TAKAYASU

[ewela]

Hi.

I am looking for any information about TAKAYASU. Can you help ??? We have a few members diagnosed with TAKAYASU (our Polish forum) but we do not have too much information about this disease. Maybe someone of you could share knowledge on the subject ... Thanks in advance.

ewela

[nanny4]

Hi there i think it is a type of large vessel vasculitis,if you put VASCULITIS into google you. will get lots of info,also take a look at the Vasculitis UK FORUM.sandy.

[Coppernob]

Sorry, this isn't going to help at all, but I just looked up Takayasu and my immediate thought was just 'Jeez, how many more variations on this theme are 'they' going to throw at us'?!?!

Hope some others can share something more constructive!

[ewela]

Thanks for answering .. Whatever I could find I put in our forum already ..but I am looking for people that experienced this disease. Thank you for giving me an idea to check on Vasculitis UK FORUM... I will try it.