since having Lupus I ahve become dyslexic has this happened to anyone else?

[jennyhe]

[Hidden]

Hi Jenny - I think it is common to have trouble spelling and writing even if you did not have trouble before, in common with difficulties in finding the right words when we speak. It's very frustrating. I try to go slower and take care to check everything I type, but even then don't necessarily see my own mistakes.

All I can suggest is to keep trying - and try not to panic about it. When I panic, it gets worse.

Do you have any tricks that you use to help you that might help the rest of us, too?

[nanny4]

Hi there,sorry I can't really help you,but just wanted to say ,my daughters 27has lupus,possible had it from a young child.

When she was at school I had a battle with the teachers,we would sit with her every night and listen to her read,she could often read the ling words but always gor the short. ones wrong,even as a teenager.

The schools all read she didn't have a problem,and that a large amount of children had the same problem. Idiots!

To cut a really long story short,when my daughter was getting her eyes tested when she was about 20,the optician asked her to good the book and read the first two lines.

The optician then went on to say,that she specialized in dyslexia,and did my daughter know she was dyslexic,my daughter went on to tell her that,NO! She had never been told she was dyslexic but that she always thought that she was.

My daughter has a good job,great pay,has to deal with budget and figures on a daily basis,so she has managed to over come her dyslexia.

She will always have problems,but she just does her best to over come things,she has to deal with health and safety,finances,legal paperwork etc,she is great at her job,and she had to train staff ,even management train

So I know I didn't help much,but just wanted to answer your question, sort of,sorry!

Sandy.

[Davros]

Lupus unit call this acquired dyslexia caused by micro clots from APS interfering in brain function. Found warfarin makes a big difference and I don't struggle as much.

Was very strange when had a dyslexia assessment at university because the assessor when in to automatic mode saying I must have had a hard time at school, been side lined, etc. she just couldn't get her head round the fact I haven't always been dyslexic and just kept making assumptions about my life that made me quite annoyed because she just wasn't listening

[janjan78]

Not noticed a huge difference yet but I do get the odd word mis-spelled & really have to think about how that word is spelled whereas before it would just be there & I know it was right.........but I do have a real problem with word assciation......not sure if this is migraine related (in the lead up to or after a migraine) or if this is to do with Lupus or not but I have a terrible time (though other people- my husband esp. find it hilarious!!) with me trying to explain what I want but in my head I now what I mean but the words that come are NOT what I want!!!!

For example: I was wanting stuff in the kitchen shifted so I could get the clothes horse out to the patio to dry & asked my hubby to please move the high chair so I could get past.....he looked at me like I had 3 heads....so I asked again...can you please move the high chair so I can get past......he said we don't have a high chair pet our son's 14!!!! lol I wanted the breakfast bar stool moved another time....I get quite wobbly sometimes coming out of the bath so if I need a hand my hubby will just lend me an arm for balance.....in doing so I stood up & said would you look at all this spider-fluff stuck to my legs.......it was bubble bath foam!!!! lol don't what was worse was the fact he actually knew what I meant this time lol I have more scenarios like that but my friends have kinda got used to me now but it gets me down some days cause they shouldn't HAVE to get USED to me.......yes it's great that they make light of it for me so as not to make a big deal out of it but there's days I need my brain to function properly & it doesn't & it's embarrassing

[moontreegoddess in reply to janjan78]

Hi janjan78

I can relate to this very well. I'm really bad some days and I feel like someone has switched my brain off completely. I even stare blankly according to my family and can't consentrate on anything. I've come out with some pearlers I can tell you. Yes it amuses my friends and family and I'm glad some lightheartedness can come out of it but I also sometimes wish I didn't sound like such a weirdo at times like asking for something at the shop and my words come out wrong x x

[annie330]

Thank you for asking this question. Over the last few years since my health changed and I got diagnosed I have noticed a change in my writing and typing. I am always mis spelling words or using the wrong word. At work my emails are set to spell check before being sent, which is great but it doesn't pick up the wrong word correctly spelt. I also struggle to find the word I want to say.

I check all things many times before sending, posting on here etc., which has an impact in that everything is slowed down, when I try to go at what I would consider normal speed there are so many errors.

My handwriting sometimes doesn't even look like I've done it (that happened at christmas when I was doing the cards), my hand writing has never been the best but there are times when I can't read what I've put.

Bizarrely I hadn't even thought about linking this, and from the replies it is obviously that there is a problem.

[annie330]

Sorry meant to say that not all days are the same, some are better than others.

[mummyswift]

Hi, i definately have problems with forgetting words, mis using them, or spelling them wrong. The thing that drives me crazy is names. I can look at family and just have no idea what their name is. My family too think its funny and are patient with me, but its not funny. I had a really good job before, and was energetic. These days my husband wont even let me use a grill if he not in, as i left that and oven on before now. i never have no energy to do anything and at the min am housebound yet again. Seems i only get out to go to my appoinments. I am so grateful to have support from my husband, 2 boys and my parents and sister. I just wish i could repay them back by getting better but its not happening.

Sorry to have gone on, i just needed to rant. No sleep and constant pain of lupus, scoliosis (with secondary curve) and bloody costochondritis is driving me crazy.

Rant over.

Hope everone else doing best they can.

Xxxxxx

[willow80]

I also forget words and find myself speaking as Yoda out of Star Wars (this is what my husband says,) this is because the words I use are often in the wrong order. I also have word association problems, I often forget what an item is and can relate very well with Janjan78!

My spelling and use of words used to be so good and it does distress me that it has started to impact on me. I put it down to always being tired.

I mentioned it to my consultant but he didn't seem to understand what I meant.

[Coppernob]

Me too on the dyslexia front - and I'm a freelance editor! Can you imagine?!?! Scary.

Also have the nominal aphasia. Though, oddly, I can always remember the term for that! Often feel that if I ever forget the words 'the' and 'thing' I'll become mute - because there won't be any other words in my vocabulary.

Also deeply fed up (to put it politely) with clumsiness, doing stuff like leaving ovens/irons turned on, etc. You start to feel senile - and no medic ever listens.

But at least I'm not alone! We soldier on somehow, don't we? But therefore often forget how much adjustment we've had to do and keep doing. So forget to lay it on thick for the (thicko) medics :-).

[hazelHollingsworth]

Oh my, I have been like this for years (I am 65) I got so bad I went to the doctors as I though it was altzimers and he just said 'normal' for my age! Yes that old one again and I was only 50 at the time. Then a friend said it was 'Lupus brain fog' and so just got on with things. It has made me feel so much better knowing there are others out there that are the same as me. My hubby gets so annoyed when I am for ever asking him how to spell things and when I can't 'find' the word I need. Thank goodness for my Lupus friends and this page.

Hazel not just a 'nut' but a Lupie nut!

[lupydragon]

Wow I had never made the conection with the spelling and lupus, but yes over the last few months my spelling has got alot worse, thank goodness for spell checker on all emails at work, sometimes looks like I have typed in Russsian, All the letters are there but not necessarily in the right order, will have to mention this to doctors,

[daisyd]

i have Hughes sydrome and have a lot of the same symptoms, maybe worth having a look

Karen

[Minimum]

I am Dyslexic and it wasn't picked up till I was 16 and at collage, and now that I have been told I have SLE!!! there are some day's I find stringing a sentence together nearly imposable, but as the first person said just try and not to panic or rush what your writing, you really aren't on your own there are a lot of us special people around. x

[jennyhe]

Hi Everyone thank you for all the answers and please forgive me for not answering you all had a hectic few days think today will have to be a quiet one just doing the things that need doing, saw my lovely Grandson on Friday feel the lupus now he is nearly a year old and I can only hold him for a while hope you all have a reasenable bank holiday and stay as well as you can

[krisdy]

O yes, Me too!! I just call it Lupus brain fog!! Love, Krisdy

[caninecrazy]

thankyou! i will now say i have lupus brain fog when i say things back to front at work or at home and people around me stare like im from the planet zurg!! lol x