I am sooo silly.: My partner and i decided to have... - LUPUS UK

LUPUS UK

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I am sooo silly.

tiredmum profile image
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My partner and i decided to have a night away (the first time for 4 years) and so i scanned the bbc website for the coolest place in the country. the east coast it was, forecast of 22 degrees.

I slapped on the factor 50, wore my hat, donned long shorts and a loose t-shirt. went for a walk along the seafront at 9am - thought I would be fine. Decided to move inland and visit a wood, partial shade i thought I would be fine. Silly me!!!!

By midday, I thought I was going to collapse, I was retching, my face was burning even though not sunburnt at all, my knees, ankles and feet were swollen. It took us over 5 1/2 hours to do a 2 hour journey as we had to keep stopping in the shade for me to calm down as the temp had reached 29!!!

I have well and truly learned my lesson as I lay in bed feeling absolutely terrible, so achy and washed out with a lovely sore rash across my cheeks.

If we go away again I swear it will be in the spring or autumn, a wonderful weekend spoilt by Lupus :(

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tiredmum
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Maya23 profile image
Maya23

I am so sorry to hear how your time away was ruined by Lupus. To me it feels like lupus is always stalking and when you are least expecting it, it gives you a big punch in the face! I too am finding the sunshine difficult, despite wearing sunblock, covering up and staying in the shade, I'm still flaring today and feeling really rubbish!

I hope you don't take too long to recover. despite getting caught out I still think it's worth trying to live a life where you get to go out and about where possible-shame when it back-fires though!

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