Has anybody had a EMG investigation of the muscel and nerves as part of a diagnoses of lupus?if so was there anything conclusive .

[Poppygayle]

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[tidmusshaz]

HI I think that is what I have had today, (electrical tests on the nerves/muscles in my arm&hand). My Rheumy refered me, Im under investigations at the moment for SLE, but apparently my bloods are inconclusive at the moment.

The tests tool about half an hour & the consultant was lovely and told me there & then that there is no damage to my nerves & he belives I need a scan to look into the posibillity of it originating in my neck, caused by something like spondylitis...

[Poppygayle in reply to tidmusshaz]

Hello Tidmusshaz i only had the test today too, in my arms legs and feet its a very weird feeling is't it? i am also under investigation for sel the consultant told me my reumy may want to do a muscle biopsy .I already have other autoimune problems and am Ama positive i also have bad reactions to the sun.Good luck with your diagnoses let me know how you get on xx

[tidmusshaz]

what a coincidence lol Im ANA positive and my ESR raised but some of the others were borderline I believe as as by the time my rheumy saw me the worste 8 weeks of my life were easing he doesnt get just how bad I was . tho he did say he understands how disabled I have been by this. Will let you know for sure & you too kep me posted hun sounds like we have a lot in common x

[heatherx]

I think these are what I had a few weeks ago, needles with wires attached (a bit like acupuncture needles) poked in different places in my arms and legs. They showed I didn't have muscle damage but nerve damage on my right side. They didn't say what this meant though. I have had a quite a few mini strokes were my lupus is affecting my brain but strangely even though they're saying I have damage on my right side its my left side that I actually struggle with the weakness with my leg lifting for walking etc.

If you or anybody is due to have these tests please don't listen to the google sites! I googled them beforehand and read there the equivalent of a modern day torture chamber so obviously I was very apprehensive about having them. I have to honestly say though that they were fine and although they're was a little bit of discomfort they weren't painful. They hurt no more than having your blood taken with a good gentle nurse!

Good luck everyone x x

[tremarel]

Hi there I've had all these test done as I have loads of nerve firing pain & muscle spasms. The results showed I got loads of nerve activity going on . The diagnoses after it all was neuromyotonia also known as Issacs syndrome. After having lupus for over thirty years & kidney transplant for sixteen I was told that once you have a auto immune disease like lupus it very likely you will acquire another :/ all sent to try hey, all the best to you & all my lupus friends x