looking for any information on RITUXIMAB, due to start and any info would be appreciated

[ladylou]

[misslesley]

hi there, have you tried internet, your best bet i think

[Paul_Howard Partner LUPUS UK]

There have been a few discussions on Rituximab here before. If you look in the 'tags' section, you should be able to find all the discussions on the topic. I hope this helps.

[Phantom2]

Best bet is talk to your consultant. The internet is OK, just take what you read with a grain of salt, it is not all doom and gloom and there is some good info out there

I've (male 58) done 2 Rituximab sesseions two years ago, no iobvious mprovement, now applying for funding again for another 2 year session from the PCT, as they discovered it can take up to 18 months for a result.

Be patient!!! And good luck

[charm81]

Hello,

I first had rituximab in 2005 and went into remission for 4 years then I had it a second time in 2009. My rheumatologist is now planning to administer it to be again this year as I have just suffered a severe episode of discord lupus that has been very unpleasant. It seems that rituximab is the drug of choice as it seems to keep my lupus symptoms at bay. Also since having rituximab I have not had to take any immuno-suppressant at all; only 5mg prednislone.

Obviously we are all experience lupus in differing ways so I can only speak for myself. Just be aware that it is a chemotherapy and is a very intense drug.

But make sure you tell your consultant your concerns.

[ladylou]

thank you everybody, im just bit scared of getting rituximab

[ladylou]

im 38 female, had systemic lupus for 9yrs now on azathioprine and predniselone, plaquil and other meds, strange how you have to wait on funding before you can start retuximab