Hi. How can I find out how many People with Lupus... - LUPUS UK

LUPUS UK

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Hi. How can I find out how many People with Lupus live in Southend on Sea, Essex?

AnaBorges profile image
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AnaBorges
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Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

You're the only member of this community who has disclosed their home as Southend-On-Sea.

We do have a trained LUPUS UK contact who lives in Southend. I can send you her contact details privately if you'd like?

AnaBorges profile image
AnaBorges in reply to Paul_Howard

Hi Paul, I would love to have her contact if you please. Would like to share some of my ideas with her and my fears as well.

fiona734 profile image
fiona734 in reply to Paul_Howard

I also live in the area, Shoeburyness.

I would so appreciate contact with others in the same circumstances.

I have and am, on a mission to educate my local Consultants.

One of whom has actually telephoned me back at home on a few occaisions.

He has allowed me to have The Lupus UK Christmas Brochures put in his Rheumi clinic and is looking forward to receiving some of the books they sell.

Things really changed for me when he pysically saw first hand the Discoid Leisions I was covered in and how my hands were locked in spasm and other joints were really swollen

Such a differemce to being told I was mad and that I had nothing wrong for so many years.

janiceray profile image
janiceray

Mine is the same as Paul's so contact him to get Phone Number

All the best

AnaBorges profile image
AnaBorges in reply to janiceray

Thank you Janiceray I've done that.

Keep Well

fiona734 profile image
fiona734

I have recently joined and would love to be intouch with people around here. I have only 1 friend, a busy son who was convinved I had gone mad when I became too ill to work. and a live-in carer (father figure) who has been my hero.

I lived in the USA for 10 yrs returning in 2000. Went straight into Senior management then became too ill to work. Moved here to be near husbands family, however with Drs saying there was nothing wrong with me my husband left and his family disowned me because I was driven to trying to kill myself.

angus50 profile image
angus50

Hi

My goodness I have just read your posting, How awful for you what on earth is wrong with people do they really think that we would choose this life over working you would have to be crazy huh. I live in near you too in Leigh.

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