Worsening symptoms

[JCM1992]

Hi All. I posted a while ago, I am 31, was under rheumatology several years ago but they discharged me, my symptoms have ramped up the last 4 years and more so 12 months

High ANA, Joint stiffness and severe pain, ulcers, fatigue, brain fog.

Headaches. Hives bruising

I have finally been referred back to Rheumatology and just want to know what I should be asking them to test for aside from ANA.

I've attached some pics of what I feel is a butterfly rash, is anyone's similar to this

This is not when I'm warm etc its just random.

[StriatedCaracara]

cureus.com/articles/162942-...

Figure 1 has tests they might use.

[Quuen]

It does unfortunately look like a butterfly rash. Mine looks like that. I noticed mine comes up when I'm warm, stressed or been exposed to too much UV light. I decided to pay for my own gym membership as I wasn't getting much assistance from NHS. I started a seated chair class twice a week and aqua aerobics class once a week. After a year of sticking at it, it was the best thing I ever did for my joint pain.

It may be worth asking for hydrotherapy and a dietician referral. I have also changed my diet slowly, trying to eat more fruit and veg. Cutting out sugar and processed food as they also contribute to inflammation.

Hope this helps!

Good luck in your journey!