lungs : hi does anyone have restrictive lungs or... - LUPUS UK

LUPUS UK

31,841 members28,178 posts

lungs

Hometeam2016 profile image
6 Replies

hi does anyone have restrictive lungs or oxygen that drops

Written by
Hometeam2016 profile image
Hometeam2016
To view profiles and participate in discussions please or .
6 Replies
Graystar profile image
Graystar

Yes especially when I have an infection or during a flare.

Maverick77 profile image
Maverick77

hi hometeam2016 I’ve had lupus since 2002. I was diagnosed because I had pleurisy /fibromyalgia. Since the early years I had problem with my lungs. My breathing is erratic at best. I’ve always had phlegm and couldn’t get it shifted. Some days I can’t walk very far for I think my lungs will burst. I had two chest infections and pneumonia since July last year which all affected my lungs. I started going to the salt room 6 weeks ago and my breathing has improved greatly and I have no problem shifting phlegm now. I can sleep on my back now which I couldn’t do for years because of pain in my lungs when I lay down. I check my own oxygen levels now and it’s well improved. I wish you well🤗

Hometeam2016 profile image
Hometeam2016 in reply to Maverick77

Hiya how do they diagnose lupus please and my only symptom is the oxygen drop oh a cough constantly and I do have a red rash looks like a burn at times accros my face

Maverick77 profile image
Maverick77

Hi lupus is determined by specific blood tests which can be done by your consultant if you have been referred to one. If not your gp should refer you to the appropriate department. Best of luck.

Suvi8901 profile image
Suvi8901

Hi,

…”…or oxygen that drops…”🥹??

..When you say oxygen that drops do you mean your blood oxygen saturation level is NOT at or above 95%?

NORMAL BLOOD OXYGEN saturation should be between 95% and 100% usually measured by a fingertip Pulse Oximeter.

You need to eliminate covid 19!

Oxygen levels can drop with covid infection.

You should see a doctor.

Hometeam2016 profile image
Hometeam2016 in reply to Suvi8901

I have done tests there negative , I’m under a hospitial for tests etc and yes when walking around my oxygen sat can go to 85-87 I then stop and it goes back to 96-97

You may also like...

Fighting this Lung disease

I have systemic Lupus along with interstitial lung disease im now on oxygen 24/7 and now on immuran...

Lupus and the heart/lungs

Lupus and the heart/lungs ? What are people’s experiences I’m struggling to walk for more than 20...

lung ribcage issues with lupus

issues. I have had lung function tests in the past, which have shown restriction in lung function,...

Rib pain or lung pain?

nothing..eventually at night I took 1 naproxen( I have GERD issues) so cant take NSAIDs. Yesterday...

Shrinking lung syndrome

lupus has got to! Have had SLE for many years, on prednisolone, hydroxychloroquine and have just...