Hi all, having joined the forum today am giving a big HELLO and best wishes to all.
A close family member has had cutaneous lupus for the past 2 years and is having great difficulty in limiting her flare ups even though taking cortisteroids and hydroxycolliquin for the past year.
Even though her symptoms are limited to facial rashes,including a Malar rash, it doesn't seem any of her current medications are working and the cortisteroids as she tries to taper down seems to always result in a significant flare up.......particularly at the 10mg/day level.
As above, I am a newbie to the forum but would appreciate any high level advice from anyone with a similar history who have managed to resolve their situation and also in our efforts to seek an effective solution are considering "Coimbra Protocol" treatment(elevated vitamin D3) and would be interested to hear from anyone with experience of this treatment protocol also.