Student looking for patient perspective on light ... - LUPUS UK

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Student looking for patient perspective on light sensitivity to artificial light for dissertation

Debbie_kinsey profile image
Debbie_kinseyAdministratorLUPUS UK
4 Replies

Hi all

A student has gotten in touch and is looking for someone to answer a few questions over email about experience of light sensitivity to artificial light, such as fluorescent lighting or particular kinds of LEDs.

If this is something you may be interested in helping with or you would like more information, please email me on Debbie@lupusuk.org.uk and I will put you in touch with them.

Many thanks

Debbie

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Debbie_kinsey profile image
Debbie_kinsey
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4 Replies
Fredhouseboat profile image
Fredhouseboat

hello, I’d be happy to help, i’m retired now, but in my working days I didn’t have a diagnosis of lupus which I have now but I always had to have the fluorescent lights off in the office and if I was in any health setting or GP surgery I’d have to ask them to turn off the light As my eyes would become irritated and I could not look toward the light at all.

Debbie_kinsey profile image
Debbie_kinseyAdministratorLUPUS UK in reply to Fredhouseboat

Hi Fredhouseboat, thank you so much. If you send me your email address via private message or email (debbie@lupusuk.org.uk), I'll pass on your details to the student. Many thanks.

tjo52 profile image
tjo52

Hi Debbie..more than happy to help..I have polymorfic light eruption PLE/Antic Purigo..I find supermarket lighting horrific..as I do computer lighting..TV/HD TV film..and of course (my criptonite) have major reactions to the sun..

Debbie_kinsey profile image
Debbie_kinseyAdministratorLUPUS UK in reply to tjo52

Hi tjo52, thank you so much. If you send me your email address via private message or email (debbie@lupusuk.org.uk), I'll pass on your details to the student. Many thanks.

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