muscle spasms: I’m really suffering with painful... - LUPUS UK

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muscle spasms

BK47 profile image
BK47
8 Replies

I’m really suffering with painful muscles in arms, legs and shoulders. They are so weak and go into cramp at the slightest effort. Does anyone know if this could be due to meds-hydroxychloroquine and methotrexate? Rheumatologist says my lupus is controlled and not active at the moment so it can’t be that. I’m 75 and struggling to do simple things with my arms 😣

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BK47 profile image
BK47
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8 Replies
LuzyCLL profile image
LuzyCLL

try slow, gentle stretching , yoga for back pain on Youtube (Yoga with Adriene), only do as much as you can. It is the only thing that helps me

BK47 profile image
BK47 in reply to LuzyCLL

thank you for the tip x I will try that x

CavendishCool profile image
CavendishCool

I agree with the yoga totally, but then I would, I AM A YOGA TEACHER (best said in the Haribo voices of WE ARE THE POLICE). Yoga has simply changed my life and my studies and research of the said subject about pain, nervous system means that I do still have pain, some nights it keeps me awake and I do cry, but I have learned to work with my breath through the times when the cramps, nerve and inflammation pain are so bad that if it does nothing it provides a distraction until each spasm passes. If you look for mudras online and do them so slow, it seems like nothing will work, you have made a start. I teach yoga 4 days a week helping people like me. To give you heart - my eldest participant is 87 and my youngest 30 and you just have to be kind to yourself, always. Don't I sound perfect - NO WAY, I'm just NOT going to let this Lupus take me without a fight. Nothing can happen without the breath, so take the deepest breath that is comfortable for you and then exhale it out really slowly and within your comfort zone. Yoga doesn't have to be fast or end up tying yourself in knots, it's about untying the knots that you put there inadvertently because that's what life chucks at you. Failing that have a look online for restorative yoga or yoga nidra. That helped enormously in the days, months after my spinal surgery 4 years ago. Btw, Thursday is the day when I collapse in a weeping mess because I've taught yoga and I think WHY? 😫, by Friday, it becomes Why Not? I do appreciate that I'm lucky - really is anyone lucky with this autoimmune stuff? I am classed as "mild" even though I'm being checked for another little beauty of Psoriatic Arthritis. Hope you find some relief from somewhere and if you want some more yoga stuff, then please feel free to allow me to bore you to tears. Hope your days and nights get a little better very soon. Namaste 🙏 🧘‍♀️❤️

BK47 profile image
BK47 in reply to CavendishCool

thank you so much for the advice x I will look up online yoga. My daughter is expert in yoga but she lives in California- she’s always trying to get me to do yoga. I can’t afford classes but will try online x

CavendishCool profile image
CavendishCool in reply to BK47

You're welcome. I just wanted to say that I also started off with this guy, Leon who is definitely free online. I really enjoyed his classes and I had completely forgotten that I used to do them when I was first diagnosed with Lupus; in the early stages they thought it might be RA. I would also say that I would repeat the class over and over until I felt like moving onto another one. Here's the link, hopefully versusarthritis.org/about-a...

Thanks for your good wishes for the Psoriatic Arthritis - just had the blood tests this lunch time, but it will be what it will be. Take care of yourself in the best way you can for now. Namaste 🙏

BK47 profile image
BK47 in reply to CavendishCool

hope you feel better soon too and the psoriasis doesn’t develop 🙏🏻

LittleGamer profile image
LittleGamer

I get muscles spasms, cramps and weaker muscles. Even if your lupus is controlled it can cause that I’m pretty sure. I think it’s part of it for some people although it’s not a big symptom of it. I would definitely recommend to do a little bit of exercise or yoga like people are saying. Maybe also try to take some magnesium tablets for a while? Best wishes x

BK47 profile image
BK47 in reply to LittleGamer

thank you I have started the exercises but magnesium is a very good tip! I have some magnesium cream I could rub in and I’ll get some tablets . Thank you for replying x hope you stay well x

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