Deep Vein Thrombosis: hi all well 2023 has started... - LUPUS UK

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Deep Vein Thrombosis

BK47 profile image
BK47
6 Replies

hi all well 2023 has started badly for me. I had Covid, for the second time, quite badly at Christmas. Following that I had horrendous pain and swelling in my right leg. After crying with the pain I managed to see a superb young doctor who sent me straight off for a D-Dimar blood test, which showed I have a DVT.

Now back on steroids and anticoagulants. I’m awaiting a scan to see how and where it is.

Just another twist in the battle that is Lupus. Has anyone else had a DVT?

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BK47 profile image
BK47
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6 Replies
minka profile image
minka

Don't know had the pressure test on legs though and that they said was ok.

WinterSwimmer profile image
WinterSwimmer

I had a DVT in 2019 - a long and dismal story of having to wait 5 months to be seen by rheumatology when I was having a flare of lupus nephritis - it was extremely unpleasant. I had to inject heparin for 6 months, and still occasionally get pain in my affected leg. I don't take blood thinners now. Hope you recover quickly.

Poshcards profile image
Poshcards

Yes, about 20 years ago, and I have had 6 scares since, in fact I had scans last week for one at my hospital and bloods, they said no to dvt in thigh but couldn't scan my calf as it has blistered, I have a massive cellulitis infection. So now on anti biotics that dont agree with me xx

BK47 profile image
BK47 in reply to Poshcards

oh no that’s worrying! I am on steroids and anticoagulants and haven’t had the scan yet!

Soe1 profile image
Soe1

Hi, I get surface clots all the time. It’s quite scary really, when they burst or travel they leave horrendous bruises. You really need to take it easy xx

BK47 profile image
BK47 in reply to Soe1

thank you so much for replying. I’m sorry you are suffering too!

I’ll try to take it easy 🤞

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