Would you like to take part in a BBC Wales docume... - LUPUS UK

LUPUS UK

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Would you like to take part in a BBC Wales documentary looking at living with chronic illness?

Alida_Bennett profile image
Alida_BennettPartnerLUPUS UK
4 Replies

We have been contacted by BBC Wales who are planning a year of content focusing on chronic illness/disability in 2023 – running a series of stories about people with chronic illness/disabilities. BBC Wales would like to see increased representation from these groups in stories that aren’t about disability/health issues. The hope is that, in this way, new voices might become regular contributors on a wide range of issues, long after this season has finished. We have been asked for our help to reach members of the lupus community who have interesting stories to tell, particularly in light of the growing cost of living crisis.

BBC Wales are also looking for a family who may have multiple issues across several generations, i.e. a child, an adult and a senior, so that they could then perhaps follow the journey of that family over a 12 month period.

There will initially be a week of content across all BBC Wales platforms, in English and Welsh, during the week beginning 16th January.

If you would be interested in taking part in this project, please let me know at alida@lupusuk.org.uk

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Alida_Bennett profile image
Alida_Bennett
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4 Replies

Hi Alida, I would be interested as I have Lupus etc but I am constantly judged because I don't look like I am suffering. Sometimes have my gym clothes on when I am off to the gym and people don't realise how much pain I am in or don't take me seriously when I say how much pain I am in. I have gone to the Doctor's for years and many don't put all the pieces together, and if they had I could have been diagnosed many years ago. Looking forward to hearing from you.

Alida_Bennett profile image
Alida_BennettPartnerLUPUS UK in reply to Riselikeaphoenix_123

Hi Riselikeaphoenix_123

Many thanks for your response/interest. As mentioned, please could you email me at alida@lupusuk.org.uk with your contact details as I need to collate details of those interested and then discuss with the researcher concerned (please also confirm that you are happy for me to share these details with the researcher) . Many thanks.

Kind regards

Alida

Cas70 profile image
Cas70

Hi Alida - I would be interested. I have Discoid Lupus and Sjogren’s- life is a constant struggle.

Alida_Bennett profile image
Alida_BennettPartnerLUPUS UK in reply to Cas70

Hi Cas70

Many thanks for your response/interest. As mentioned, please could you email me at alida@lupusuk.org.uk with your contact details as I need to collate details of those interested and then discuss with the researcher concerned (please also confirm that you are happy for me to share these details with the researcher) . Many thanks.

Kind regards

Alida

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