No more plaquinel

[Paloma25]

Hi everyone,

Last year I developed late-onset ulcerative colitis and my colon ruptured and was removed, then I got sepsis which went into my eyes and has been caused macular problems, so I had to go off plaquinel. Luckily the eye injections I received have stabilized my problem so I should not have further vision loss. Has anyone else had to give up plaquinel? Any thoughts or shared experiences would be most welcome.

I have missed my friends here while being away. I hope you are all doing all right.

Best wishes, Paloma

[Bobbydoodle]

Oh gosh you have really been through it haven’t you. I’m sorry I don’t have any experience in this area so I can’t share any feedback but did the medication cause your issue in the first place?

[Paloma25 in reply to Bobbydoodle]

Thanks for your kind thoughts. No, the plaquenil was not at all related to my problems. Because my eyes are now very vulnerable due to the sepsis-related infection my rheumatologist asked me to stop using it.

[CecilyParsley]

Hi Paloma, I am so sorry for your terrible ordeal. Such a serious and invasive surgery and then the eye issues too bless you. I developed macular odema after a Rheumatologist upped my dose of Hydroxychloroquine to 600 mg. Fortunately after two years this has completely gone and I have now re started on a 200 mg dose.

I sincerely hope that you are now starting to feel so much better xx

[Paloma25 in reply to CecilyParsley]

Thanks. I am happy to learn of your progress, and it's heartening to know that the eye problems can resolve.

[Djlr]

IT can be done.

4 people I know have had to stop plaquenil & they became even more DILIGENT at listening to their bodies symptoms- especially new ones.

Ask DERMATOLOGIST for STEROID 30 PACK - for any flare you can’t kick with REST AFTER more than a week.

REST, AVOID internal & external STRESS, STAY out of SUN, vDon’t take ELDERBERRY, ECHINACEA or Alfalfa Sprouts (all know to stimulate Immune System), BE PROACTIVE- read & WORK w/drs.

You can do it 💜

lupusuk.org.uk/manage-your-...

pubmed.ncbi.nlm.nih.gov/954...

new TREATMENTS:

lupus.org/resources/treatme...

[Paloma25 in reply to Djlr]

Thanks very much for the encouraging and helpful advice and resources, Djlr.