Work and Lupus, MCTD recovering from covid - LUPUS UK

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Work and Lupus, MCTD recovering from covid

Geeforce99 profile image
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Hello, Has anyone else experienced Covid with Lupus and MCTD and tried going back to work too early after testing negative for Covid then signed off by GP, work now pressuring asking by text “are you any better?” on fifth day of being signed off, Not sure if I should drag myself in tomorrow and see if I can cope fatigue is coming in waves and affects memory recall and shortness of breath at times but is not as bad as was when I was pinned down on bed five days ago, legs feel like jelly.

Are there any supplements which could help recovery that anyone knows of or just to help with fatigue and memory recall?

Thank you 🙏

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StriatedCaracara profile image
StriatedCaracara

Even people without known connective tissue disease sometimes are finding it difficult after covid:

covid19-recovery.org/storie...

This YouTube clip may be of interest regarding neurological effects.

Post-COVID-19: The Long Haul of the Pandemic, UT Health Austin Webinar, September 27, 2021

youtube.com/watch?v=o-xApfL...

26 minutes in - Esther Melamed MD explains possible basis of some of the neurological symptoms resulting from long covid, giving specific details of auto-antibodies involved and mechanisms.

I caught covid in March 2020 right at the beginning of the pandemic, GP on phone said they thought I had flu even though 111 had said my symptoms were covid. No tests available unless you were in hospital..

It took me months to get better and then I discovered I had autoimmune disease.

Pacing is so important. Plus 'believe in yourself' no matter what others say. It is not them who feel ill.

Are you able to involve your rheumatologist, if GP and work is not helping..

People find things do improve with time. This resources page may help

covid19-recovery.org/resour...

Take care 🙏👍🤗

Geeforce99 profile image
Geeforce99 in reply to StriatedCaracara

Hello StriatedCaracara

Thank you for the links and video, makes sense why cough and breathing are bad taking anti inflammatory foods and supplements more often.

When were you able to get back to work? I know all cases are different just wondered

Thank you 🙏 😃

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