Please take part in this patient survey from the University of Cambridge if you haven't already!

[Chanpreet_Walia]

Please take part in the rheumatology patient survey from the University of Cambridge and patient groups. The survey asks about your medical relationships, disease symptoms and mental health.

In order to be a part of this study you will need to meet the following criteria:

- Be aged 18 or over.

- Be diagnosed with an autoimmune rheumatological disease. This includes diseases such as Rheumatoid Arthritis (RA) and other inflammatory arthritis, lupus, Sjögren's, undifferentiated (UCTD) or mixed (MCTD) connective tissue disease, systemic sclerosis, PMR, Inflammatory muscle diseases, and vasculitis.

- Participants from all countries are welcome

The survey should take around 20-40 minutes to complete (you can pause or stop at any time).

LUPUS UK are supporting this study as it will raise awareness about the areas most important to you and where more support may be needed.

Learn more about the study and complete the survey at cambridge.eu.qualtrics.com/...

If you have any questions, please contact the lead researcher (Melanie) at [e-mail]

Many thanks for your help!

[MelanieSloan]

Thank you LUPUS UK and everyone here.

We now have over 1000 surveys completed and just over 300 of those are from lupus patients which is fantastic! We need 400 + to do a whole separate research paper looking in depth at lupus neurological symptoms so please do try and complete if you haven't already.

We are particularly short of people responding from the following groups:

Men, people from ethnic minority groups, people with UCTD (only 40 so far and need 50 at least)

We need you so we can see if there any particular challenges experienced by different groups and we need everyone with lupus, UCTD or related diseases (sjogrens, scleroderma, vasculitis etc) who is 18 or over to complete if time/energy.

We are also short of doctors to complete their survey so if anyone has friends/contacts who are GPs, rheumys, neurologists or dermatologists please email me and I'll pass you their survey to pass on.

I will share some early results as soon as we can but they are very interesting. It's looking like we can really make a difference and raise difficult topics with the doctors and policy makers to improve understanding and hopefully care.

Thank you everyone!

[EG74 in reply to MelanieSloan]

How can I publish this in a Facebook group for Warrior Lupus in America?

[MelanieSloan in reply to EG74]

Here is the link which you're very welcome to share - thank you very much!

cambridge.eu.qualtrics.com/...