Immune system with SLE: My daughter has SLE and... - LUPUS UK

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Immune system with SLE

Agnieszka81 profile image
2 Replies

My daughter has SLE and her doctor lowers her immunity with the drug (Micofit/ Mycophenolas Mofetil )

The second doctor claims that we should raise the immunity.

There's a lot of disadvantages of Micofit.

So my question is does anyone take Micofit and know if we should be raising or lowering the immunity?

Thank you in advance.

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Agnieszka81 profile image
Agnieszka81
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2 Replies
Yunnan profile image
Yunnan

Hello, my son takes Mycophenolate mofetil and it has really helped manage his SLE. Everybody's circumstances are unique to them, but children tend to need the immune suppressants to effectively dampen down their over reactive immune system. My son takes 3ml (600mg) twice a day and thankfully has not had side effects.

I wish you and your daughter all the best.

Agnieszka81 profile image
Agnieszka81 in reply to Yunnan

Dziękuję za odpowiedź,

Chociaż trochę się martwię, bo na ulotce leku jest napisane, że lek prowadzi do zmniejszenia liczby płytek krwi i leukocytów, co może powodować białaczkę. Nie wiem co robić.

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