Hi Everyone. I have had SLE diagnosed 2 years ago. Cutaneous lupus diagnosed recently. Still not managing to get things on an even keel despite having a very thorough and fab rheumatologist.
I have recently had a bad flare and had to up my steroids which I have managed to now get back to 5mg. This unfortunately seems to be my maintainable dose for now. I also take hydroxy 400mg a day and I have started azathioprine and am increasing it slowly. I have had 2 weeks on 25mg then upped to 50mg 6 days ago so still a low dose. The trouble is I am constantly hot. I dont mean just usual weather hot I mean horrendously hot although I don't have a temperature.
I could really do with knowing if this is normal or something i shsould be concerned about?. Have any of you other lovely people had a similar problem and if so what do I do about it and how long does it take to settle? I am getting desperate.
Apart from the heat nothing else too much to worry about ... I think but to be honest it feels.like problems are forming an orderly queue.
All help and advice greatfully appreciated thank you 😊