Hi: Hi my name is Anne, I'm 55 from Scotland and... - LUPUS UK

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Corcan profile image
9 Replies

Hi my name is Anne, I'm 55 from Scotland and this is my first post. Spends like I'm on a gameshow or at a meeting of some sort.

I have autoimmune disorder??? Don't know if it's even disorder. Have Rheumatoid Athritis and Hashimotos Disease (thyroid) and during lockdown all my symptoms seems to have come together but I'm terrified to go to doc. I'll list what I can. Very intense burning feeling in my outer forearm, leading to severe pain going down arm to fingers. My forefinger and middle finger are both now permanently numb.This has happened twice now, about a year apart lasting about a month each time. Fatigue to the point where i barely leave the house, joint paint, fever, scarring of the eyes, curving fingernails, memory problems...I cant even think. Does this sound familiar? Thank you

#autoimmune disease

#autoimmune disorder

#lupus

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Corcan profile image
Corcan
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9 Replies
CarolMcl profile image
CarolMcl

Hi Corcan, sorry to hear you're suffering so much. The fatigue, joint pain, fever, memory issues and curving nails I can relate too. I really do think you should make an appointment with your doctor to discuss your symptoms

Corcan profile image
Corcan in reply to CarolMcl

Yeah it's scary. I've just read your bio. I'm sorry you are suffering and have found treatment?

CarolMcl profile image
CarolMcl in reply to Corcan

Yes it is a scary journey and like everyone on this site, one we wish that we never had to go on. We've had to do it and it can take a long time to get there but at least now speaking for myself, I'm now on treatment which is hoped to prevent further deterioration. Presently I take hydroxychloroquine, methotrexate and rituximab infusion

Spanielmadlady profile image
Spanielmadlady

Hi corcan.i have hashimotos which is autoimmune thyroiditis .if you have 1 autoimmune illness you are likely to have others ...I have 5 🙄. You could be suffering unnecessarily all for the sake of seeing a Dr.who treats your RA and hashimotos ? Apart from easing your symptoms treatment is also about preserving organs for the future as AI illnesses can damage organs with connective tissue such as the heart,kidneys and lungs.please ring your gp .whilst it maybe scary those of us who have been before you are are still standing and here to tell the tale.x

Corcan profile image
Corcan in reply to Spanielmadlady

Yeah, the problem in Scotland is that it's still really difficult to even see a GP. Thanks though I'm glad you got help. 💜

Spanielmadlady profile image
Spanielmadlady in reply to Corcan

It took 5 years to get help but in those 5 years I've had issues with my lungs and heart and I've got class 5 lupus in my kidneys so I'm not scaremongering I speaking from experience .I'm sure you can have a phone call and ask for bloods and urine to be done and a referral to Rheumatology i take it no one treats your RA. You've got to be assertive and shout .you are doing yourself no favours by not seeking help.google the spoon theory and the 11 point criteria for lupus...you may find them helpful if you doubt auto immune illness

Spotty-ewe profile image
Spotty-ewe in reply to Corcan

I also live in Scotland and can get phone appts quite easily. If the dr then thinks he/she needs to see you they will make an appt there and then for you to see them. That has happened to me twice recently when a new AI condition has been diagnosed on top of my SLE which took over 35 years to be diagnosed and other condtions! So keep trying! Xx

CarolMcl profile image
CarolMcl

I totally agree with Spanielmadlady. Help doesn't happen overnight, took me just over 4 years, and like SML, by that time I had quite extensive damage to my lungs. You really don't want to wait any longer than necessary to get help. I am aware how difficult it can be to see a GP, I'm from Scotland too but you do need to shout and be heard

Alida_Bennett profile image
Alida_BennettPartnerLUPUS UK

Hi Corcan

Welcome to the LUPUS UK HealthUnlocked Community. We offer a free information pack which you can download or request at:

lupusuk.org.uk/request-info...

In relation to your query, below is a link to our publication regarding diagnosis and symptoms, which you might find helpful.

lupusuk.org.uk/wp-content/u...

You are clearly very concerned about the symptoms that you are experiencing, and I would urge you to see your doctor. It can be very frightening speaking to a doctor about such things, but getting the proper support and treatment is vital.

Do please let us know how you get on.

Kind regards

Alida

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