Lupus Rash??

[nicola21]

I'm hoping people can help. I've struggled for years with joint pain and inflammation, bowel issues, extreme fatigue, foggy/forgetfulness and headaches. I never thought too much off it until last week when I started to get facial swelling and took myself to the emergency department as all of the above were quite extreme and I was quite unwell. I'm awaiting some blood test results as they think it may be an autoimmune disorder. Today I have come out with this rash on my hip and then smaller, individual patches spread out on my other leg. Any help, advice or sense of direction as to whether this sounds and looks like possible lupus would be much appreciated.

[Starsandanna]

I also have a similar rash! I was diagnosed with Lupus & APS in 2016 & fortunately my symptoms are mild. Recently in the last 3-4 months, I’ve been getting a similar rash almost like hives but round circular red patches. It comes and goes. At first I thought it was an allergy so the pharmacist recommended I take antihistamines which helped but never really goes away. I had a blood test & my rheumatologist said it’s not related to Lupus? I’m due to see a dermatologist so I’ll ask for her opinion. (I’m wondering if it could do with the covid jab ……) Try taking a strong antihistamine & see if it improves. X

[Hidden in reply to Starsandanna]

Note I don’t have lupus but Stills which is an AI Disease with some similar symptoms. I have felt worse since my first covid jab, no further increase with the second and I will go for the next one. It could be coincidence that symptoms have worsened and I guess I’ll never know but we do know the vaccinations works whereas not much is known about how Stills works - Q E D

[nicola21 in reply to Starsandanna]

Hi

I've been taking 180mg antihistamines which I have for my chronic urticaria and angiodema but not helping ease this at all. I also wonder if it could be due to the vaccine as I've never had anything like this before x

[NannyDonna]

Hi Nicola, this is very much like my rash. I had it for years before my diagnosis. The medication I have to settle my joints etc has finally reduced the rash to almost nothing. We are not doctors here though so I would suggest you get it checked just to make sure. Good luck with getting a diagnosis and getting things under control x

[nicola21 in reply to NannyDonna]

Hi

Was It painful at all? Well I say painful, more like the surrounding muscles/bones are achy and this just burns when pressed against.

What medication are you taking? I'm on a 180mg antihistamine for chronic urticaria and angiodema but it's doing nothing to reduce whatever this is x

[nicola21]

Thanks for your replies. I'm awaiting bloods back but definitely going to go back to the GP to have this looked at

[Amakura]

A referral to a Dermatologist would be beneficial.

[Ingrid1234]

Try this pamphlet (6 pages) for some basic info on lupus symptoms, diagnosis and treatment:

lupusuk.org.uk/wp-content/u...

❤️👍