But You Look OK

[Pumpkin2009]

I agree with heatherevans28 under Susazannah16. If you read my earlier post on this to Suzannah16, I say I have lupus and other conditions, got Covid and have long Covid,etc. That said, I am not a proponent of throwing money and media at Covid. Nor using it to divide people politically, etc. I do believe that whatever it is called, having Covid has exasperated my lupus and added new symptoms. I got Covid last November and am still struggling. I can only go with what my doctors say and that is to take over the counter meds for the symptoms. They are not saying it is lupus causing more symptoms. Actually, they aren't saying a whole lot because they only rely on blood work and what fits in their box. in the beginning of the Covid stuff, my rheumatologist said the lupus did not put me so much at risk. After I got it, i am not sure what he thought. Over the counter medsare not solving anything and don't work for lack of taste and smell. I have reinvented how I eat. It is about texture and I keep telling myself that in the big picture, there are worse things. Although going on 11 months is getting old, my taste and smell could come back at any moment, right?

I can't sort any of this out and am so worn out from what my body is doing or not doing, but know that so many have worse things. I do believe that Covid can cause long term issues that may be linked to things people already have and may not know it or become a trigger, but no one knows and I am not sure anyone ever will. I just wish people wouldn't blame people who got Covid and are in the minority with long Covid or whatever it is for what the media and so-called research and pharmacy companies and politicians are doing to create chaos.

It is like people saying to people with lupus and other chronic diseases, but you look ok.

Are there people who are using the term long Covid as an excuse and not sick? Probably. But some do have something still going on that doesn't make sense. Haven't most of us been not believed by others having an AI disease. That even includes family and friends.

Healing hugs to everyone.

[Pumpkin2009]

Thank you for such a great post.

Healing hugs.

[MrsMarigold in reply to Pumpkin2009]

Hello. I wrote a post then became distracted and it flew away……🤨. Long Covid is real. We believe you. I know a personWho has asthma. Now after Covid an oxygen bag with him wherever he goes. I’m sorry you have this to deal with. It’s hard enough to have lupus and all it’s friends😩

I think you look great;even with your lupus🤷‍♀️ Lol. I’ve given up on humans who just can’t or won’t acknowledge our illness based on a great hair day or energy burst.

If it helps, most people have never heard of it. The real heartache for me is family members who choose to remain remote from the truth of it or deny it exists. I hope

You feel better very soon. Titters

[Pumpkin2009]

Thank you for your response, Titters. I agree that the real heartache is with family members.

Healing hugs.