Factor 50

[Willow1414]

Please can anyone else tell me if they are struggling to get the above in Prescription?

Sun sense I’m usually prescribed is not available from the manufacture at the moment .

What other brands is anyone else been able to get on prescription ?

I struggle with the thick white creams due to RA .

Any answers much appreciated .

My doctor says I can buy it .

I don’t think my doctor understands what low income is . I struggle to pay the bills ,

🦋❤️

[PMRpro]

Chanpreet posted about this this morning:

healthunlocked.com/lupusuk/...

[Willow1414 in reply to PMRpro]

Thank you PMRPro

I’ve just read it , I didn’t know that you can get sun protective clothing on prescription , I’ve asked Chanpreet fir more information

🦋❤️

[SurferGuy]

I buy mine from Amazon as my GP won't prescribe sun creams . Amazon is lot cheaper than chemists and you can guy a massive bottle too

[Willow1414 in reply to SurferGuy]

Dear surferGuy

Sorry to hear your GP won’t prescribe , your doctor is not following the updated guidelines for prescribing , if you have a confirmed diagnosis of Lupus you should show him the NICE information about prescribing for Lupus . You can also ask Lupus Uk to send this information on to you .

Print it off and show it to your doctor , I had to give up working not too long ago , I do struggle with low income.

🦋❤️

[SurferGuy]

Thank you Willow for the information. Do you have a link to the NICE guidance? EDIT: I think I have it... is this it bnf.nice.org.uk/treatment-s... ?

Also, other than sunsense, what other creams are you guys using?

I find sunsense very greasy on my face. Are the spray on factor 50's any good?

And so sorry to hear you had to give up your job. There are a lot more jobs these days where home working is possible. Would you be able to do this?

[Willow1414 in reply to SurferGuy]

Hi Surferguy

The guidance will tell you the reasons to prescribe and the conditions , lupus is described as a serious condition , and sun protection cream is not a recommendation it’s an essential part of lupus treatment .

I was prescribed once uvistst factor 50 , but Carnt use it , too thick , has I have RA and hurts my hands to run it on .

Yes working from home ? I really don’t know what I could do working from home , I Carnt even function day to day . Too many health complications and medication issues .

Just waiting for occupational therapy visit .

Think I might be needing a career at times .

🦋❤️

[Willow1414 in reply to Willow1414]

Carer not career

Words always change with predictive tx .

Makes you sound like a twit twoo ..

🦋❤️

[SurferGuy in reply to Willow1414]

Brain fog does that to me. So embarrassing.

[SurferGuy in reply to Willow1414]

So was the link I have above the correct nice link?

I just have my opinion on the uvistat below 😂 horrible stuff.

And fully understand how difficult it is with so many health issues. I managed a young lady who had to retire under medical grounds at the age of 37. It was so sad as she was absolutely brilliant.

[Willow1414 in reply to SurferGuy]

Hi Surger Guy

I Carnt open the link , but if it states what I said , it will be , any problems , lupus Uk will forward you the link .

Sorry Carnt be of any more help

🦋❤️

[svfarmer]

Hi Willow yes there is a national shortage from sunsense so my GP have changed to Uvistat x

[Willow1414 in reply to svfarmer]

Hi Svfarmer

Yes my doctor prescribed this Uvistat for me too , Carnt use it , too thick , it’s not fit for purpose for lupus sufferers . Only suitable for sunbathing or surfing .

Not to mention , the tremendous amount of extra washing of clothes and white stains on everything , everything has to be disposable , and no black shoes or handbags .

🦋❤️

[SurferGuy]

I've had uvistat before. It's horrific. It's like wallpaper paste!

I bought some nivea 50 today. Will see how it is.

Any other recommendations from the local supermarkets?