Very sad to read that Nice are not recommending Belimumab for active SLE on the nhs 🥲. Consultation closes end of this month .
Nice guidance : Very sad to read that Nice are not... - LUPUS UK
Nice guidance
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Harry19
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I was led to believe that Belimumab had been approved and given the green light to go ahead. Where did you get this info from?
Check this out and other pages:nice.org.uk/guidance/indeve...
“…Closing date for comments: 5pm, Friday 25 June 2021…”
I wish I'd known this sooner. I would've spoken with my consultant as I had an appointment just last week. It'll be absolutely ridiculous if they don't approve this after all the success it's had.
I am deflated as I was told it would be great for me . It was a bit of light . We can all write to nice and just hope they change their thinking . However I doubt it’s that easy
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