Dear Lorraine Before I was diagnosed with Lupus one of my symptoms was nausea and vomiting especially in the mornings and it didn't stop until I started treatment for lupus.
Hi Lorraine. Yes!!!!!!! It is a real symptom. I’d be a stick without something to rev up my appetite. SLE with aPL here on Plaquenil, IVIG, aspirin, etc. Antihistamines helped a lot for nausea so I take allegra twice a day. Makes me feel like an element of MCASness may contribute to my nausea. I have vestibular problems as well without vertigo so the nausea for me seems more functional like slow GI or too much acid. I chalk it up to dysautonomia on my end. All my tiny nerves are shot. Antacids sometimes help but not always. I know this isn’t legal in the UK but medical marijuana has worked amazing for me. Now, I almost never feel nauseous as crazy as it sounds. I too smell of myasthenia or MS at first glance but my tests were also all negative. I know how you feel. You’re not anxious or making it up. The nausea is so REAL.
There are medications for nausea like ondansetron, compazine, prochloperazine. They work well and I prefer compazine but they make me reeeeally sleepy so I don’t use them very often. They also constipate me horribly.
I suffered from nausea and vomiting prior to my diagnosis too. I found that once I was diagnosed and treated it eased a lot. I am now feeling exactly the same as I did prior to diagnosis and am waiting to go back to a Rheumatologist at the end of May. I hope you can get some help and answers.
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