Ro positive

[Lioness42]

Hi everyone

Hope you're all doing ok and keeping your spirits up somehow. Just wondering if anyone else has had this and what it means from a lay person perspective. Also does anyone experience a cramp like painful feeling in their bones i call it" bone pain" every now and then i get it always in the shoulders and arms and it only goes away with a strong painkiller. It has brought me to tears a few times. I would love to know if others get this type of thing and how they deal with it.

Thanks very much 😀

[happytulip]

Yes absolutely. I had it last week. Sometimes it's just a really bad ache in my long bones. Other times it's like having white hot pokers rammed I to my bones or being poked from inside my bones. Its horrible. X

[baba]

Ro antibodies can cause heart problems for the baby during pregnancy.

It is also associated with Sjögren's syndrome.

[Hidden]

It’s a yes from me regarding bone pain. My bone pain was caused by my vitD being very very low. Have you guys had your bloods checked recently?

[lind126]

As explained to me by doctor when I was first diagnosed, a positive Ro is associated with photosensitivity as well as an increased risk of congenital heart problems for the baby while pregnant. I was Ro+ during both my pregnancies and was followed up regularly. Otherwise, I just make sure to stay out of the sun and wear sunscreen all year around.