Vaccine + SLE: Hello, I was wondering if anyone... - LUPUS UK

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Vaccine + SLE

HappyVibes21 profile image
9 Replies

Hello, I was wondering if anyone with SLE and or Lupus Nephritis taken the covid vaccine? Any thing to prepare for would be helpful

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HappyVibes21
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9 Replies
Andfiona profile image
Andfiona

Hi I’ve got sle and lupus nephritis, I had Pfizer vaccine dose 1 four weeks ago. All ok. I got a sore arm for two days after and about 7 days after I felt slightly unwell but not sure if related. All ok now. I found the going somewhere and seeing lots of people (about 15 in one room) stressful but it was quick, good luck 😊

HappyVibes21 profile image
HappyVibes21 in reply to Andfiona

Thank you Andfiona glad you are ok now 😊

Spanielmadlady profile image
Spanielmadlady

I've got both lupus and lupus nephritis i had the oxford vaccine 2 weeks ago without any issues

HappyVibes21 profile image
HappyVibes21 in reply to Spanielmadlady

Thanks Spanielmadlady , that's great to know 😊

Spanielmadlady profile image
Spanielmadlady

The wait is the same ...12 weeks between doses.my mum had Pfizer and had a sore arm I had AstraZeneca and had a headache so for us there didn't seem any difference. Sorry that may not help xxx

F9927 profile image
F9927

Hi, I have SLE and had the AstraZeneca first dose yesterday. Injection was uneventful and no pain at all. But woke in the middle of the night with flu like symptoms, shakes, fever and generally felt really awful. Lasted the whole of a day, lack of energy, shivers and slept the day away. Now feeling much better. Given that it is not a live vaccine is odd to have such a reaction but maybe worse because I have had Covid last year. Who knows! Just thankful that the vaccine exits and let’s me honest much better than the awful side effects of Covid

HappyVibes21 profile image
HappyVibes21 in reply to F9927

Thank you F9927 for sharing. I'm sorry to know you had a rough time from the vaccine. I'm glad to know it didn't last for long and you are recovering well. Sorry too that you had covid last year. Hope you have been feeling alright today.

Catseyes123 profile image
Catseyes123

Hi, I’ve got Lupus Nephritis & had the Astra jab and I’m ok. Was worried about a flare or side effects afterwards but still better than catching Covid. I was absolutely fine, no side effects I guess every one is different. Just go in thinking it’s better than covid, that’s what I thought. Good luck & stay safe xx

HappyVibes21 profile image
HappyVibes21 in reply to Catseyes123

Thank you Catseyes123 . Glad to hear you are ok after yours. I am nervous of the potential side effects. But agree need to try and be positive and remember that it's better than catching covid x

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