Painful hands

[littlemissp]

I have had Lupus SLE for 16 years. My main problems are skin related. At the moment I am not on any medication as all of the ones I have tried ( and there have been many) seem to have unpleasant side effects. My Rhemy now wants me to try Rituximab which I am scared to try but will probably end up having to have as my options now are very limited as my WBC is now down to 1 as all the meds seem to have an effect on it. The fatigue, joint pains and skin issues are slowly coming back after 1+ months of no meds. One strange thing that is really troubling me is very painful fingers. I seem to have sores on them which are painful and tender and on the tips of my fingers just under the nail I have sores which are also painful especially if knocked. Does anyone else have anything like this ??

[Barnclown]

Hello littlemissp (lovely forum name 😄)...I suspect we may have something similar going on...my consultant’s are trying to figure out my version of this...I posted with photos on this forum about this a little while ago and there was a big discussion, so maybe something in there can be useful...here is the link to that post:

healthunlocked.com/lupusuk/...

Hope you’ll keep us posted while you & your consultants investigate & treat you ❤️🍀❤️🍀 Coco