Lupus sufferers

[Oval]

Hullo everyone,

Iam in my fifty’s and have been diagnosed with Lupus just last month! Have been living a healthy and happy life until I started experiencing constant pains in my right leg! Iam happy to share and hear from people suffering from the same illness!

[Ceri-NorthWales]

Gosh, Oval, I'm so sorry for your recent diagnosis. It is a huge shock. Pleaase take all the time you need to process and deal with it. It is so difficult!

Unfortunately, I can't help much as I'm also recenly diagnosed and been going through a tough time trrying to get healthcare. What I can say though, is how much of a llifesaver this forum is! I have had so much help and support from so many here and this has helped me get the right treatment for long standing, untreated B12 deficiency.

There is a whole wealth on knowledge on this forum. Please never be afriad to ask - no matter how big or small.

Welcome to the forum and I wish you well with your diagnosis x

[Forgot2mention in reply to Ceri-NorthWales]

Hi ceri, sounds like you are feeling a bit more positive, glad to hear it

[Lupiknits]

Welcome! I cling to this forum although I have an assortment of auto immune disorders.

It’s a good place to be, for support, advice, sharing, joking, venting. Always someone here

[Redfox25]

Welcome Oval. I had a diagnosis of glandular fever which was all fine until I got pain in my right hip and I thought, 'this isn't right for glandular fever'. And that was the beginning of me figuring out for myself that I had lupus. It's still very hard to take now that I have an official diagnosis and I was in denial for a bit.

This forum is great, so you've landed in the right place. Some advice I have received is to learn as much about lupus as you can. There is a lot of really useful information on the Lupus UK website. The Lupus Encyclopedia is a very very informative handbook with tonnes of practical advice. It's about £25 but worth it.

[Forgot2mention]

Hi, oval welcome to this site. I joined in january as it is my granddaughter that has lupus, it affected her brain but thankfully she is now recovering. You will find on here that you can talk to people with same issues as you, or you could just have a good old rant there’s always someone to listen. Sorry about your diagnosis and hope you get help soon 😘