Please Need help for diagnosis and what to do next please help.

[Htak]

Male 33 years old

No family history of any serious diseases or illnesses. In March of 2019 I was given a beta blocker propranolol and citalopram to take for a few weeks after having heart palpations from overdoing in the gym and unable to sleep for a few days. Upon taking the medication after 2 weeks I started having severe adverse side effects/reaction from that medication and this is where my health deteriorated. I first noticed that the one night I took the medication I felt a rush through my whole body like something spread through the skin and body, burning ribcage and Having night sweats and weightloss for 2 weeks only in march 2019.

Now I have Bones pain/aching in sides of left and right ribs bones and bones pain in arms

Bloated abdomen and pain in RUQ

Muscles aching weakness and joints aching

Deep skin feeling of inflammation in back and by knees but no rash showing but can feel it under the skin when i had that reaction to the medication.

Extreme fatigue

Investigations

Ct scan chest, abdomen pelvis normal

MRi chest and abdomen, normal but 16 cm liver with sub centimeter cyst in liver and kidney everything else normal

Xray normal

Ultrasound normal

Body feels totally different since that reaction to the medication I took for only few weeks back in march 2019. Please please need advice possible diagnosis or what to do next. I have attached photo of blood test results. Please help. Thankyou

[cctexan]

Hi. I’m sorry you’re hurting and scared. I wanted answers immediately too but personally I’ve learned googles not my friend bc I’m certain I had some version of an African bed bug virus

Search well grounded sites like Cleveland clinic, Johns Hopkins if you have a diagnosis. If you don’t?, none of us are drs and can’t tell you stuff. But we can tell you the kinds of questions to ask. Or better yet, those sights plus lupus foundation often have it

I had to learn to be my own advocate.

Stop Breathe. Make appt to have results explained to u. ( just what you are asking us)

Ask what is diagnosis

What can I do at home to help

What is prognosis /timeline

What should I expect

And tack a recorder to catch the answers cus you will misunderstand half of it

Bring cookies for nurs(s) bc you will be calling her / them for the refill or stupid questions you forgot. ALWAYS strive to be the patient they remember for the right reason. Bc WHEN the time comes that ya might get overlooked at appointment or need to be squeezed in or jumped to top for results. They remember me

( course I’ve been fired by a psych, on go and a rheumy. For standing up cus I wanted answers. Now I do it a bit nicer)

Oh btw. Just FYI most of us have symptoms that are years long of pain and joints and kidneys or lungs failing due to lupus. Personally I scan over someone # cus I have hard enough time figuring mine out. No offense. Just trying to help you see other perspective. Maybe if you gave in general your top issues.

My kidneys are shutting down with output down to .009 “And myriad skin problems “

People could then ask for info. See what I mean?

I know nothing about kidneys I made that up. My lupus is affecting in lungs and gi problems

[Jmiller623]

Hi Htak! Sorry you aren’t feeling well. Your labs have a few notable things. Your red blood cells are too small and this indicates possible iron deficiency. However, your ferritin is normal and is usually very low in iron deficiency so the problem could be with iron metabolism.

Your liver is quite large. Average size for male liver is about 10-11cm. Your doctors need to follow up on that immediately! This will cause right abdomen pain for sure.

IgA can be increased in many autoimmune disorders or during inflammation of the liver. This is another reason someone needs to follow up on your liver. If your liver is inflamed then it’s metabolism may be dysfunctional. Many drugs are metabolized by the liver so this may be what happened when you took the new drug. It wasn’t metabolized properly and may have been too much for you.

These are just guesses. Hard to say if everything is autoimmune related without other labs. However, your GP or whoever has been ordering these studies needs to check on liver function. High protein suggests its functioning normally but could still be inflamed.

Please keep us up to date with what you find. I would definitely harp on my docs to figure out the liver stuff pronto. Sending hugs your way!❤️

[CecilyParsley]

Hi there, I have no advice really but just wanted to say that I am so sorry that you feel so unwell. From my own experience I realise that I was struggling badly with health issues before I became very unwell in 2009. I had gastric issues, stomach pain, Inability to eat, nausea, diarrhoea, acid reflux. I had so many tests done. The doctors were convinced it was gallbladder issues, then celiacs disease, the stomach ulcers but all tests came back normal. Then I suffered balance issues, lots of falls, became clumsy. In six months I had broken my nose, smashed my teeth out, cracked my kneecap. Then excruciating pain and burning in my feet. I struggled to walk, had problems sleeping with the pain. Next searing chest pain. I was rushed to A&E twice fearing a heart attack only to be told I had pulled a muscle. By the time I was diagnosed I was convinced that I was going mad as all tests were normal. Autoimmune Disease is complex. I truly hope that you can be helped by the advice here on this site and I wish you the very best of luck.