Possible help for low white blood cells! - LUPUS UK

LUPUS UK

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Possible help for low white blood cells!

lupette profile image
4 Replies

Great self treatment news from my stepdaughter!

My stepdaughter has a classic case of lupus with kidney involvement and lots of other symptoms. Since she was dx'ed, 7 or so years ago, she has tried many natural ways of treating and many diets. The diets seemed to help her feel better but her white blood cells always remained very low . . scary low! Anyway, I think she finally found something that works! Since she started taking a mushroom supplement, they have been rising. She gets bloodwork every 3 months, and has had increasing levels for the last three checks. They are now almost normal. I started taking this supplement around a week ago and I also feel better. Perhaps for me it's just a placebo effect as I have no bloodwork to back it up. Anyway . . if anyone here has persistent low level white blood cells . . . you may want to try this:

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lupette profile image
lupette
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4 Replies
Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi lupette ,

I have edited your post to remove the link to this product. We don't really like advertising of any kind on this forum. If you have no affiliations with this company and have found this product helpful, then thank you for sharing your experiences.

I would recommend that anyone discuss supplements and/or complementary therapies like this with their consultant before trying them. This is to ensure that you are aware of any potential adverse effects or interactions with other treatments.

lupette profile image
lupette in reply to Paul_Howard

Ok . . . totally understand.

LalSD profile image
LalSD

I am sure this product is good, BUT could I please ask a question! I have an SLE.

Lupus is an over active immune system. If I take (even) Vitamin C, it goes as far as killing me. Because it strengthens my immune system as it happens I am trying to suppress my immune system to prevent it killing me. How does that work? I checked the website and the product. I would be extremely cautious. It may work for one patient, but lupus is a complicated illness. I think it could work wonders to chemotherapy patients whose immune system is weak, but for Lupus, PLEASE, be careful. We have OVER ACTIVE IMMUNE SYSTEM.

With best,

L

lupette profile image
lupette in reply to LalSD

I am no expert on Lupus and I understand your concerns. There are many with lupus nephritis (kidney involvement) for whom the white blood cells leak out in the urine. This causes a problem when they get too low because they become extremely susceptible to infections and infectious deseases.

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