Rixtaban infusion : Hey! How is everyone happy new... - LUPUS UK

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Rixtaban infusion

Hannalow profile image
5 Replies

Hey!

How is everyone happy new year !Bought myself

A pill box as that’s how tragic my life has become

Argh! Anyways, I live in dubai now and dr now wants to try me on rixtaban infusions , they are £5000 and trying to her insurance to

Cover , thank god for the NHS , we don’t realise how much things costs !

How’s everyone experience been on them?

Thanks

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Hannalow profile image
Hannalow
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5 Replies
Pickzie profile image
Pickzie

Mine been a good experience

Apricot100 profile image
Apricot100

Hi, i had a couple last year (2019) . They took around 6 months to kick in and the effects started to show in September last year. I was so pleased and happy in september as the results were fantantastic. I was told it could last a few months to a few years. I believe the effects are now starting to wear off and I have an appointment soon.

Sadly my infusions were part of a trial so, although they worked well for me albeit not for a huge length of time, i may not be able to get any more.

I don't remember experiencing any side effects. Good luck x

shareasmile profile image
shareasmile

Happy new year to you, fellow pill boxer!

I had my first infusions of rituxan last month and have high hopes that it will control my swelling and random joint pain. I live in the U.S. and just received a bill for one of the two treatments-- almost $60,000! (£45800?) That's nearly 3X my annual wage. Thankfully, I have insurance that covers most of it.

Forgot2mention profile image
Forgot2mention in reply to shareasmile

Thank god we have the nhs. My granddaughter has come home from the hospital with 40;packets of tablets, and tha’s only for a month. Hope your infusion works, my granddauighter has had 2 , so now it is just a waiting game

Princerogers777 profile image
Princerogers777

Wanting to put me on it im scared, either this or benlysta , will see

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