Long Time No Post

[Crazy_Cat_Woman]

Hello Everyone,

I haven't posted for a few months now but I thought I should come on and see how you were all doing and to give you a bit of an update.

I finally have my lupus diagnosis! It's taken nearly two years to get there. I am secretly feeling a little smug that I was right about my autoimmune condition all along.

Since I last wrote I have had several scans and procedures to rule in or out various conditions. It hasn't been an easy journey to a diagnosis but I guess many of us autoimmune warriors don't have an easy ride. I feel very fortunate to have a great team of doctors looking after me in Leeds. I also have a superb and very supportive GP.

My lupus has been playing havoc with my body for several months now. I seem to be in a permanent state of flare. It has been very difficult to cope with the pain at times.

My doctors started me on Methotrexate on Friday. I haven't been on it long enough to know if it will make a difference to my symptoms. I really hope it works, though. Even if it allows a reduction in my daily morphine dosage that would be a plus.

OK, enough of me rambling. Stay positive everyone...I'm sending you all gentle hugs x

[honeybug]

Hi CCW😊🌿🌸🦋

I’m thrilled to hear you finally have your diagnosis.

I’m sooo sorry about all of your suffering.

Take care abundant blessings.

EJ 😊🌿🌸🦋🙏🤗💗😘😇🕊

[Lupiknits]

I’m very pleased for you x Not that you have lupus, but you have treatment. X

[Barnclown in reply to Lupiknits]

🥰Me too!✌️💐🍀

[Crazy_Cat_Woman in reply to Lupiknits]

Thanks Lupiknits - The hydroxychloroquine just didn’t seem to be doing the job anymore. I’m hoping that the MTX will be better (and maybe get me well enough to go back to work??)...fingers crossed x

[Apricot100]

Congratulations! That must be a relief. I hope the Methotrexate works for you.

I'm at Leeds too - chapel Allerton. Small lupie world! X

[Crazy_Cat_Woman in reply to Apricot100]

Maybe we have met in a waiting room!!!

[Apricot100 in reply to Crazy_Cat_Woman]

Ha! Maybe! - but with my lupus brain fog I'd never know! 🙄😂