My brother

[Mybrother26]

Hi, i am new to all this but my brother was been diagnosed with lupus last year he is only 26. He has had a very tough month or so as has been unwell and now been told that the damaged caused to his heart and liver from the lupus which he was unaware of is whats causing him to have severe chest pain. He has also had/got 4 blood clotts. He has a very labour intensive job so has been off now for about 4 weeks. I am very worried as i can see it is getting him down. He has a very young family and he is even finding daily things with them difficult. Does anyone have any advice, tips or anything that i, we or he can do? I have looked at a support group but doesnt seem to be one in Dumfries and Galloway.

[Hidden]

Hi mybrother26, so sorry to hear this. Speaking from personal experience I can only say take each day at a time. I was 28 when I was diagnosed and had 7 months off work, I also have young kids to deal with at this time too, get in touch with lupus uk as they have great information that can help you all understand it too. I too had clots and it affected my kidneys on both occasions. Easier said than done but try stay positive and if you or he needs to chat get in touch on here.

[Mybrother26 in reply to Hidden]

Thank you.

[Jhpc]

So sorry to hear about your brother.

As well as all the advice from the doctor/specialists it’s important that he can communicate with you and his family so yous can relate to what he’s going through and give him the support that he needs.

This site is excellent if you need any advice or just chat how he’s feeling, there’s a lot of support out there.

Maybe he can get a referral from his doctor if he’s feeling anxious.

He’s lucky to have such a caring brother who wishes to help him.

[Mybrother26 in reply to Jhpc]

Thank you

[Oshgosh]

Have you looked on the BLF Breathe easy list.

Only at 26 he might find the rest of a group a bit old for him

Joining this forum may be useful to him,as May ringing or contacting Lupus UK.

Hope things go well .

[Mybrother26 in reply to Oshgosh]

Thank you

[Krazykat26]

Hi My brother

Firstly welcome to the forum..you've come to the right place..here u will find out about all things lupus related..it's a supportive community of people who can offer advice from experience..I'm guessing that you're talking about your younger brother?!?!

It's great that you're here coz hopefully u will both feel some relief just connecting with others who live this 💩24/7!

Lupus UK website is definitely the place to look for info about lupus..they have blogs regarding all aspects of living with autoimmune illness..for instance struggling at work..how to prepare for drs appointments etc..so check it out!!

If u Google 'the spoon theory' it might help loved ones to understand what it's like living with lupus.

Your brother is already on the autoimmune highway..n it's great that he's got u alongside him!! 🤗

Kat 😽😽 xx

[Mybrother26 in reply to Krazykat26]

Yes younger brother, thanks for advice, well get him to log on here and have a look. I will definitely Google spoon theory. Again thank you.