How are you all ❤️

[Buckley123]

Generally interested how you all are how’s life how’s coping ❤️

[Lupiknits]

I was very giddy from getting the PIP Tribunal in my favour, though I’m now beginning to fume at DWP ineptitude, and the assessor’s downright failure to tell the truth. I only hope they have an internal feedback system based on “failed badly”.

Other than that, I have been very withdrawn lately. Lots of appointments in the pipeline now that the NHS summer holidays are over. I just want to be left alone. That won’t happen so I need to find something to make me laugh.

[Buckley123 in reply to Lupiknits]

Aw lupiknits I’m glad you have the appointments Better they keep a eye on you x

I see tour post on pip it’s brilliant news although they should not treat us all like

Liars

My assessor made lies up too it’s really hard to accept so I just gave up xx

[Horsewhisper]

Thanks for asking Buckley, it’s thoughtful of you. My collection of AI conditions is steadily growing...in addition to UCTD, Raynaud’s, Sjögrens, gastritis and costochondritis, Scleroderma has been suggested due to swallowing difficulties, caused by a thickening of the tissue in the oesophagus. Just waiting for an endoscopy appointment to come through to get to the bottom of it and to see what the treatment options are. So, pretty much along with everyone else here, a bit of a waiting game.

I manage to cope by getting outside every day with my lovely Labrador and spending time with family. Keeping up to speed with my health management I find gives me reassurance. My kids are a great reason to keep going and they help me cope in so many ways - I don’t think they realise, which I think, is quite nice. Anyway, I hope you are keeping ok? Xx

[Buckley123 in reply to Horsewhisper]

Sorry to hear about the scleroderma diagnosis but I guess it’s better that they have diagnosed then ignored ❤️

I c think mine is going uctd sarcoidosis and thyroid way not sure if that’s possible but this is my theory.

Yes your right our children is what keeps us going.

I’m keeping ok thanks 😊

Painful legs atm

Idiot doctors felt my raft today 😂 poor man I nearly ate him 🤦🏼‍♀️ Xxx

[Lisalou19]

Hi Jade,

Just gliding through life right now.

How are you? X

[Buckley123 in reply to Lisalou19]

Is that good xx yeah I’m okay thanks xxx