Scared now : What do you think Post removed as... - LUPUS UK

LUPUS UK

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Scared now

Buckley123 profile image
6 Replies

What do you think

Post removed as it showed my name thanks for all comments anyone that will find the letter interesting can message and il send you one ❤️

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Buckley123 profile image
Buckley123
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6 Replies
MEW53 profile image
MEW53

Sounds like you have a lot going on, so good luck.

I just wanted to warn you that your name and dare of birth are visible which may attract scammers, may be worth amending so these details are removed.

Hope you don’t mind me mentioning this.

Buckley123 profile image
Buckley123 in reply to MEW53

Thanks I didn’t realise xxx

KayHimm profile image
KayHimm

Sounds like you have a superb clinician who picked up on important things through his exam. I can understand how it must feel scary to see “autoimmune disease.” Seeing it on the page makes it very real.

It certainly is not surprising as several of the doctors have been suspicious of an autoimmune process. You were most afraid of multiple sclerosis. It sounds like they are pretty sure you don’t have that. That is good.

It takes time for these illnesses to be diagnosable. You seem to be caught in an early stage, though you have not been well. The doctor did say you looked good clinically. That is very positive. He saw no signs of involvement of lungs, heart or anything worrisome. You have struggled for a long time. You are now in good hands. They do always need a precise diagnosis to help you.

Better days ahead for you, I hope.

K

KayHimm profile image
KayHimm in reply to KayHimm

I meant to say they do not always need a precise diagnosis to help you once they know it is an autoimmune process.

Buckley123 profile image
Buckley123 in reply to KayHimm

Thanks so much kayhimm for your constant kind words.. I am very worried but it’s better to know and limit the damage as much as possible knowledge is power and all that xx

KayHimm profile image
KayHimm in reply to Buckley123

I agree. Better to know and have hope of feeling better with treatment.

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