Is sudden aggressive onset of SLE with Lupus Neph... - LUPUS UK

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Is sudden aggressive onset of SLE with Lupus Nephritus normal?

PCRHDRFDF profile image
4 Replies

My partner's SLE and Lupus Nephritus came on suddenly 6 weeks ago and he's currently hospitalized. It's very aggressive and rapid and he's struggling because he's deteriorated so fast. How can I best support him?

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PCRHDRFDF
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4 Replies
miccika1 profile image
miccika1

It is possible to come on suddenly and aggressively. It is different for different people and the whole spectrum is out there. I have heard that men more often have more aggressive disease compared to women, in general. You can read a few articles on beat practices when dealing w a person w a chronic illness. Moat of the time you can just be there and not say much. Don't try to help too much as there is not much you can do. Just say, let mek know if you need anything from me and keep it simple. This might be a tough time for him so once he gets better from therapy he could see a behavioral psychologist that specializes in how to deal w chronic illness.

All the best. Hope he could get a good treatment

PCRHDRFDF profile image
PCRHDRFDF in reply to miccika1

Thank you so much

Roarah profile image
Roarah

My advice is that you also take care of yourself right now. It is so hard to watch a love one's health crisis. Make sure you are eating, resting and deep breathing regularly. It is hard to rember that in order to help another we must always put our oxygen mask on first. I second the recommendation for behavior health for your partner but also recommend a care takers group for you. I am thinking of you both. Good luck.

PCRHDRFDF profile image
PCRHDRFDF in reply to Roarah

Thank you that's actually sound advice. I have M.E. myself and am fortunate to have carers come in every day to help me and a very small group of friends who are being there for me, so that I can do what I need to support him. Main difficulty is that he is stuck in the middle of a war zone overseas with only a close close colleague who is a friend and the UN doctor for support.

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