New Diagnosis

[alanptodd]

Hi, my GP has recently diagnosed a very high probably of Lupus and i am awaiting a hospital appointment. I have all the other symptoms apart from the rash, does the rash always appear? I have Raynards and also one big toe has a severe bruise but i have not injured it and it has no pain. Does anyone else have this?

[Chanpreet_Walia LUPUS UK]

Hi alanptodd,

Welcome to the LUPUS UK HealthUnlocked community. We offer a free information pack which you can download or request at lupusuk.org.uk/request-info...

Skin involvement affects around 60% to 70% of people with lupus. Lupus presents differently in each individual, therefore, no two people will share the exact same experience i.e. one person may experience a skin rash whilst another may not. To learn more about lupus and the skin, you can read our booklet at lupusuk.org.uk/wp-content/u...

According to The Lupus Encyclopedia, quite a few changes can occur with the fingernails and toenails in people who have lupus. "They may develop hard lines or ridges on the surface of their nails; the edges of the nails may lift off the underlying skin at the end of the nails; as well as areas of unusual dark or reddish discolouration". The encyclopedia further states "These changes do not necessarily improve with treatment of SLE". It is important to remember that lupus presents differently in each individual therefore, no two people will share the exact same experience. To learn more about how lupus can affect the nails, read our factsheet on lupus and the feet at lupusuk.org.uk/wp-content/u...

To read our blog article on 'coping with Raynaud's phenomenon' visit lupusuk.org.uk/coping-with-...

Before attending your appointment you may like to read our blog article about getting the most from medical appointments here: lupusuk.org.uk/getting-the-...

Please keep us updated, wishing you all the best.

[MissusTee]

Its worth joining the scleroderma and raynauds group too, so that you have more information re your raynauds.