New medicine charges/paying for some medicines. - LUPUS UK

LUPUS UK

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New medicine charges/paying for some medicines.

MissusTee profile image
4 Replies

Thought that I'd post this, I'm just a bit worried that my eye and mouth lube for my sjogrens will be affected.

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MissusTee profile image
MissusTee
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4 Replies
Lupiknits profile image
Lupiknits

So am I! Mine aren’t prescribed yet and I’m experimenting with stuff I buy from Amazon, then hoping for the GP to do this. My only hope is the hospital wrote to me to get a different prescription if the stuff they gave me was useless. The trouble is, they think my optition can prescribe. All he’s been able to do is suggest. I’m hoping my GP will oblige when I find the ones that suits best.

Surely we’ll get a prescription to prevent even worse problems caused by dry eyes?

I do sympathise with them over people who don’t pay, expecting paracetamol on prescription.

fabwheelie profile image
fabwheelie

The way I understand it because I need pain medication for a chronic long term condition (in my case SLE, with lots of "lupus arthralgia") I can still get my pain medication including paracetamol on prescription. My Drs are also happy to still presrcibe sunscreen for me, however with sunscreen I think some people are experiencing difficulties in certain areas of UK ... here's a link to some info I posted about that last week ... healthunlocked.com/lupusuk/...

I'd advise if refused things needed for Lupus on prescription, get them to put any refusals in writing and challenge the decision, even invole your MP ... I'm all for the NHS not spending excessively, but not at the "expense of patients, and good care"

Tillytop profile image
Tillytop

That is worrying I agree. But I’m hoping that the key phrase is “minor illnesses”. Meaning that things like eye and mouth lubrication needed as ongoing treatment for diagnosed conditions such as Sjogrens wouldn’t be affected. I really hope I’m right! Thanks for sharing this.

Mummymoors85 profile image
Mummymoors85

I was told by my gp anything requested by a consultant cannot be ignored. For example I have codine and paracetamol. Everytime it gets questioned when I request paracetamol but as the consultant requested it I’m allowed it on prescription xx

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