Hoping you will get answers!!

[Jojo070674]

So even if Ana is just a bit over normal levels with your symptoms they should be able to diagnose. At first was told I had non hodgkins but 3 months later was told it was lupus. I have issues with heart kidneys and liver...also sensitive to sun light. I hope they come up with something soon for you. I know being a guinea pig is no fun!!

[Chanpreet_Walia LUPUS UK]

Hi Jojo070674,

An ANA test determines whether or not a person has an autoimmune disorder. Around 5% of people with lupus have a 'negative' test result. dsDNA antibodies are very specific for lupus (as they are not typically seen in any other condition or in healthy population) only approximately 60% of people with SLE will test ‘positive’. Therefore if someone is positive for these antibodies, it often means they have lupus, but if they are negative it does not necessarily mean they do not have lupus. For more information, you can read our blog article on ‘getting a diagnosis of lupus’ here: lupusuk.org.uk/getting-diag...

Light-sensitivity and kidney involvement can be associated with lupus. To find out what symptoms are commonly associ=ated with lupus, click here lupusuk.org.uk/the-symptoms/

Below, I have included some information links that you may find helpful:

Lupus and the kidneys: lupusuk.org.uk/wp-content/u...

Lupus, Lungs and Heart: lupusuk.org.uk/wp-content/u...

Coping with light-sensitivity: lupusuk.org.uk/coping-with-...

Please keep us updated, wishing you all the best.