My daughter have Lupus

[spanskmargeritt]

Hei,

I have 3 children....all of them have ME...but now the eldest is diagnosed with Lupus. We think maybe it have been Lupus the whole time. She has been ill since she was about 8 years...now she is 30. Is there anybody who have been in this situation?

[Krazykat26]

Hi spanskmargeritt n welcome!!

U have come to the right place there r loads of us on here n u will find out about all things lupus. I myself have had a reasonably healthy life until 2009 when I developed shingles n I believe that is what started my journey into lupus.

Lupus UK is w fabulous website n I would urge u n your daughter to have a look..it's very informative..u can join for £10 per year n they produce a quarterly magazine which is full of advice, tips n education about this tricky condition. I say tricky because we all have things in common but then each n every one of us is unique!!

It is possible for lupus to develop in children..it's called juvenile lupus n they're r warriors here of all ages!!

Paul or Chanpreet from lupusuk visit this forum so u will probably get a response from them when they're in the office..they will post any appropriate links for u to have a look at.

U have made a big step contacting us here..there r more lupus warriors than I thought..I hadn't even heard of it until I was diagnosed in 2017 but it's more common than I thought. Well I'm glad to say that I found this forum n it has helped me to understand n manage my health so much better!!

So keep posting n u will find friends who know exactly how it is living with our various manifestations of all things autoimmune. N the same goes for your daughter..I know she's thirty now but there are friends on here who have lived with it all of their lives. U are not alone!! 💐Xx

[spanskmargeritt in reply to Krazykat26]

Thank you for your answer!🌹It's a lot to think about with this illness. Hope we will understand more bit by bit.

[Krazykat26 in reply to spanskmargeritt]

U will for sure!! Just take your time..arm yourselves n u will get more of an idea of how to live with lupus..n we're all holding each others hands..even reading what's posted on this site helps.. we're all ill at different times n finding out how other peeps deal with it will make u better informed n hopefully u will gain understanding about what works for u n your daughter 🌺🌺xx

[Chanpreet_Walia LUPUS UK]

Hi Spanskmargeritt,

Welcome to the LUPUS UK HealthUnlocked community. We offer a free information pack which you can download or request at lupusuk.org.uk/request-info...

ME and lupus have several overlapping symptoms such as ‘brain fog’, flu-like symptoms, muscle/joint aches and pains and sleep disturbances. To find out what symptoms are commonly associated with lupus, visit lupusuk.org.uk/the-symptoms/

We have published a number of different publications on certain topics with regards to lupus i.e. muscle/joints or the skin and hair. To access the publications, click here lupusuk.org.uk/publications/

Wishing you all the best.