Awaiting systemic diagnosis but having major multiple probs,chronic bile malabsorption every nerve lit up like banging funny bone pain,

[Burnley1234]

Digestive and severe nerve pain and infection?

[Hidden]

I have all these type of symptoms - particularly the funny bone type pain everywhere.

I’ve had it for so long now that I’m almost used to it. In my case I’m told it’s small fibre neuropathy and sensory ganglionopathy of Sjögren’s. This is my main systemic disease so may be worth asking about if you are struggling to get a diagnosis. It can show up in nerves and digestive system before showing as dryness in eyes and mouth.

If Lupus or Sjögren’s don’t show in your blood then the only way to confirm Sjögren’s is by lip biopsy.