Breathing pain with humidity - please support me.

[AuroraMaryColombo]

💜LUPUS WARRIOR NEED URGENT HELP💜

I need absolutely some help an suggestions from you all lupus warriors or lupus specialists from all around the world to makes me understand what's happening with my lupus.

Since around 30 days it's raining a lot in Italy, and from this I started to feel deep pain in my chest and rheumatoid pain.

10 days ago they found significant inflammation in my lungs (acute lupus pneumonia syndrom - autoimmune consequence of lupus who affect me 1 to 4 time per year since last 10 years), but with antibiotic therapy it will be better...but it wasn't.

Specialists in hospital tolds me that lupus wake up with also neurolupus symptoms (neuropathy and spinal pain).

The last two days, the weather turns dry and sunny and had some health improvement, breathe again easily and feel bit better. Everybody tolds me that my face seemed healthier.

Today...the rain comes back and my deep pain in the chest too. Worse and worse.

It is like I'm losing more than 50% of my lungs capacity and when I took a deep breathe I feel like I'm weak, tremble and and there is always this disconfort to breathe and strong pain. The specialist noted that I feel dizzy breathing deeply, and say that is linked to carbonic gaz residue in my lungs (???).

They do an ecography of my heath (as in the past I had two cardiac surgery linked to lupus) but it's all right for my heart. But not much than 4 days after the hearth ecography, I had an extrasystoles crisis for the whole night and feel really bad like before surgery (done respectively in 2013 and 2015)

At the moment pneumologist told me that there is no water in the lungs (no more pleuresy). But still a cloudy area on my right lung on the last x-ray, like mucus accumulation and saw that there is inflammation in my bronchi.

Have you already feel same type of crisis? Could it be linked to fine particles in the air (Milan air area is deeply polluted by fine particle but I'm located higher in the mountains and normally air be clean and pure more than in brussels where I was living first)?

I'm really lost and really bad too. I need help, please.

#Lupus #LupusWarrior #SLE

[whisperit]

Hello AuroraMaryColombo

Wish I could magically make things better for you. What medications are you taking at the moment? What is the plan for the management of condition right now? And is there a specific thing you want help or advice with - or is it just a kind of general howl for any thoughts? (we all do that sometimes) X

[overnighthearingloss]

I absolutely hate cold humid weather. I am better in crisp dry snowy weather than damp humid weather. It chills me to the bones and brings on all matter of lung type infections.

I find keeping the throat and kidney area warm helps, as does eating foods that are warming inside the body. So foods with ginger or spices. If you have a bath, a nice soak in a warm bath can help. Being warm in bed is also essential, but not always easy if you have a partner who's temperature gauge is set differently.

Raw garlic is a natural antibiotic if your course has finished. And just found out recently that cocoa help to combat infection. That's raw cocoa if you can get it. Not the sweetened varieties of hot chocolate.

greenmedinfo.com/blog/daily...

One more thing... If you are anywhere near a sauna facility these can be brilliant as they heat you up and the dry saunas can also help with lung issues in my experience.