Hello there: Hi there, I'm new on here and never... - LUPUS UK

LUPUS UK

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Hello there

4 Replies

Hi there, I'm new on here and never talk to anyone about Lupus or myself because I basically get fed up trying to explain what Lupus is and how it effects me. I would like to talk about and listen to people's experience with Lupus.

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4 Replies
whatsit profile image
whatsit

Wellcome you’ve come to a great site with lovely and helpful people with years of living with Lupus 😘

in reply to whatsit

Thank you.

Kevin53 profile image
Kevin53

Welcome. Best wishes. Kevin Chair Lupus UK

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi Kitman1,

Welcome to the LUPUS UK HealthUnlocked Community! We have lovely, supportive members here who are always ready to help and listen.

We offer a free information pack which you can download or request at lupusuk.org.uk/request-info...

Would you like someone to chat with over the telephone? If you would like someone to speak to, I can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at chanpreet@lupusuk.org.uk

We published a short video on how to explain lupus to family, friends and colleagues which I hope you will find helpful: lupusuk.org.uk/family-and-f...

Please let us know how you get on, wishing you all the best.

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