Advice

[Lucyllama]

Does anyone know if rigors are connected with lupus

[LupusKaren]

Hi Lucy, yes rigors can be associated with Lupus, in my case always at night, my consultant calls them nocturnal shivers, no real explanation as to why. I do know a couple of Lupus patients who complained of this whilst on Methotrexate.

[Lucyllama in reply to LupusKaren]

Mine are always at night. They are really unpleasant things to experience. I take no medication for lupus as I'm allergic to nearly everything.

[Hidden]

I have these but only since having a cold virus in January. I get them most nights and when flaring, during the day. My unconfirmed suspicion is that this is due to sleep apnea in my case - although I think it might be central sleep apnea rather than obstructive sleep apnea as I was tested for this but nothing showed.

[whisperit]

My experience is of frequent (daily) episodes of shaking with sweating and flushing. However, these have only manifested since being on steroids, so I suspect they are related to steroid/cortisol levels rather than the disease process itself. Blinking horrible, though x

[Lucyllama in reply to whisperit]

I'm on no medication at all for lupus. I always thought rigors was an underlying infection somewhere. But they haven't found anything yet with me.

[whisperit in reply to Lucyllama]

yes, that would be the first thought usually. One of the problems with these complex systemic conditions is that they can affect virtually any and everything and cause every possible symptom under the sun

[Lucyllama in reply to whisperit]

It certainly can.