hi π, my name is Sean, I've had discoid lupus for 20years , never met or had contact with anyone else who has the damn thing so looking forward to talkin,all the best π.
Hello: hi π, my name is Sean, I've had discoid... - LUPUS UK
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Hello Sean
Hope you find the forum helpful, and look forward to hearing more from you in due course x
Welcome Sean
I think a few people here have discord Lupus, most like me have SlE and others have many varied health conditions but all are welcome
Look forward to hearing more X
Paul_HowardPartnerLUPUS UK
Hi Hidden ,
If you are also interested in meeting other people with lupus, we do have a Regional Support Groups who organise meetings and events. You can find your closest group on our website at lupusuk.org.uk/regional-gro...
Hi Hidden I also have discoid lupus which was diagnosed 3years ago. I have 6monthly check ups with dermatologist & take hydroxy over the summer months. All year I use factor 50 every day. Hope this info helps
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