Hello: hi πŸ™‹, my name is Sean, I've had discoid... - LUPUS UK

LUPUS UK

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Hello

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hi πŸ™‹, my name is Sean, I've had discoid lupus for 20years , never met or had contact with anyone else who has the damn thing so looking forward to talkin,all the best 😊.

5 Replies
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whisperit profile image
whisperit

Hello Sean

Hope you find the forum helpful, and look forward to hearing more from you in due course x

Penguintaz profile image
Penguintaz

Welcome Sean :)

I think a few people here have discord Lupus, most like me have SlE and others have many varied health conditions but all are welcome :)

Look forward to hearing more X

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Hidden ,

If you are also interested in meeting other people with lupus, we do have a Regional Support Groups who organise meetings and events. You can find your closest group on our website at lupusuk.org.uk/regional-gro...

A-r-c-h-I-e profile image
A-r-c-h-I-e

Hi Hidden I also have discoid lupus which was diagnosed 3years ago. I have 6monthly check ups with dermatologist & take hydroxy over the summer months. All year I use factor 50 every day. Hope this info helps

Greentomatoes profile image
Greentomatoes

Welcome Sean,

Nice group of people on here and good information πŸ‘πŸ»

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