I have mixed connective tissue disease, I have a bit of everything from lupus, arthritis and so on.
In February I started getting really bad pains in my back/ribs going into my lower back, always needed to pee without fail every hour. I went to the doctor and they done a swab test and it showed up something small so gave me antibiotics it did help but was still needing to pee a lot but the pain went away.
Forward on 2 months and the pain came back still with needing to pee I had an appointment with my consultant today so decided to talk to her first, they did a test and said something did show up but it’s not infection. Talking to my consultant she doesn’t think it’s an infection and is sending me away for an ultrasound, I said well if it’s not an infection what is it? And she wouldn’t answer me well she did but in a doctor kind of way lol. I’m freaking out about this incase I’ve something seriously wrong going on. Anyone else experienced this? Pain and peeing a lot? But not blood or infection?
Thanks sorry for the essay lol
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Jess_doyle
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Hi I’ve had kidney pain on and off for yrs since being told I had lupus mctd I’ve had a lot of pain one infection that put me in hospital with sepcis and last sept had kidney stones although about 5yrs ago I was told I had gravel in my kidney and prostate so pain was prod from this if I’m out in the sun I get a lot more kidney pain @nd get kidney or urine injections so drink plenty water not wine
Some years ago cystitis was painful when I had problems going to the loo every 5 mins but that was down to infection and it cleared up. I shouldnt worry, it may well be that they want to see the results of the ultrasound before they make a diagnosis. Let us know the results xxx
Hi dear. Please don't panic. There could be many reasons for your symptoms, only a good Dr and analysis could find the answer.
Read about "lupus nephritis", I have stage 1, very mild.... but it took my Drs some years to give me a proper diagnosis and treament. Basically, my kidneys have inflammation and my sumptoms during a flare are similar to yours.
I was googling this and it made a bit of sense after the hospital, I’m not in enough pain for it to be kidney stones or anything, yea trying to not google it anymore till my scan 🙈
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