Meds concern: Hi I have a highly likely diagnosis... - LUPUS UK

LUPUS UK

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Meds concern

Hhood profile image
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Hi I have a highly likely diagnosis of Lupus due to past history of 2 other auto immune diseases and having double stranded DNA. I have been on Hydroxychloroquine since November 17 which has dampened the pain in my wrist and fingers but not gone completely. Consultant would like to try me on Methotrexate but I'm worried about this medication and side effects and feel it's a big step up. Wondering what other people think about this medication or whether I give Hydroxychloroquine longer to see if it helps eventually?

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Hhood profile image
Hhood
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5 Replies

Hello, i have mctd and have been on methotrexate since May last year. It's not much fun to start with and i did have some side effects such as nausea and tiredness the following day but these went after a few weeks and now there are no problems. It's a very effective medication if it works for you. Try not to read too much about side effects as it might really help. Good luck.

HazelW profile image
HazelW

I started out on hydroxy - didn't have much if any effect, so was changed to methotrexate - my Lupus has been pretty much under control since & I swear by it. Have been on it for several years now & know I will have to come off it eventually - am dreading that day !! Good luck , whichever route you take.

Treetop33 profile image
Treetop33

I've not had much luck with hydroxy either. Am very dependent on Pred which worries me. I'm giving low dose naltrexone a try before I head up to the next med. As I'm in-between specialist hospitals it seemed like a good time.

Hhood profile image
Hhood

Hi thanks for all you responses it has helped to reassure me about methotrexate. Will probably have to give it a go as can't keep going with the pain.

Kevin53 profile image
Kevin53

Go with the doc and give it a try. Best wishes Kevin

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