Can any one help

[I814u24u]

I love in the US going to neurologist and rheumatologist and no one can seem to figure out my pain. It's all over my body I've had almost every test known to man tried multiple treatment and still have pain

I'm going to a new neurologist now they are going to do a spinal for maybe MS. They're also looking at polyartharpathy any idea from anyone

[Hidden]

Yes I had pain everywhere for a few years and now it’s just tingling and numbness with balance related issues.

The two neurologist’s I’ve been under have been a bit dismissive because nerve conduction Studies have shown nothing untoward. But both have agreed it’s a very diffuse small fibre neuropathy/ ganglionopathy as part of my rheumatic disease - now confirmed to be Sjögren’s.

Having this confirmed hasn’t helped me much because they still only offer me medications that might mask it at best. But it empowers me to know that it’s not all in my mind at least!

[I814u24u in reply to Hidden]

Been tested for just about everything and then some going to get a second opinion maybe new eyes will help

[Hidden in reply to I814u24u]

It took a lip biopsy with +ANA for my Sjögren’s to be confirmed.

[AngelaMew in reply to Hidden]

Well said!!!!! I don't want to be sick!! But because I am.....I want so badly to know that I'm not crazy!! That and a proper treatment plan to get better.....or some relief if any, you know??

Thank you for your post!! Muah!!

[I814u24u]

All my Ana cpr sed rates your name it are negative all I know is right now I'm on a methyprednisilone taller and it's not helping my primary care said I'd it was anti inflammatory it should have by now I am a nurse and am sick if working in pain my wrists are extremely painful yet x-rays and all other tested show nothing no selling no Renee's just painful . It hurts to pick up my grandchildren I'm going back next month after completing my taper I have started on methotrexate only took one does so far and makes me sick I'm taking 7.5 mg once a week

[nancarolyn]

MRI of lumbar and cervical spine ordered by neurologist found pain coming from what I call a little dent in my spinal cord and other problems in back, which I was surprised at, but glad to know the cause of so much new pain.Cervical can cause pain in places other then your neck.

[AngelaMew]

I feel you & your pain!! I'm on a crazy, getting help and proper diagnoses with treatment plan Journey like yourself. I hope you get your answers you deserve. Don't give up!! Muah!!