advised to stop hydroxy

[Mandypandy1969]

phoned rheumy nurse helpline as things been getting worse since I was put on hydroxy. told me to phone back on Monday to see if I felt any better for it. I have a feeling she thinks I don't have lupus due to what I was telling her symptom wise. I feel so confused and scared because I don't know what is going on. I am forgetful, clumsy, my arms and legs feel like lead weights. so heavy when trying to brush my hair, I have to lower them again. I take lifts instead of stairs now because of the jelly/heavy feeling in my legs. I can't concentrate on reading and taking information in. I am so fatiguedi don't want to do anything and if i do I am exhausted even doing the smallest of things. confused and getting very low.