Seasonal changes: Does anyone get worse as cold... - LUPUS UK

LUPUS UK

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Seasonal changes

25 Replies

Does anyone get worse as cold weather approaches?

25 Replies
Ianrussell69 profile image
Ianrussell69

The weather changes have a massive impact in the summer it's factor 50 and a trilby then it's cold aching hands and very stiff joints o oh winters on its way 😤

in reply to Ianrussell69

Yes! My hands feel fat as *^%* and my feet throb

in reply to Ianrussell69

What’s trilby? I’m in the United States

Ianrussell69 profile image
Ianrussell69 in reply to

Sorry a hat it's like a fadora

Lupiknits profile image
Lupiknits

My tiny hands are frozen ( and feet, and nose) year round, but yes, the colder days definitely make me feel worse. Part of my last session at the Pain Management Service covered flares, particularly as the weather changes,

While I can't tolerate the sun, I do like to see it outside, so the darker colder days give me fewer simple pleasures.

in reply to Lupiknits

I don’t even have the option of pain management. What happens there?

Lupiknits profile image
Lupiknits in reply to

Pain management seems to take different forms. The service I was referred to was much more about having pain and managing with it daily, than doing anything to relieve the pain. My GP's job was to help with the pain, the service was about coping strategies.

It might be worth asking your GP for a referral if there's one available. I went for a year, and found it quite helpful ( one of the chaps had Raynaud's so we swapped experiences) . Much of the help was having the luxury of spending most of an hour face to face concentrating on what I wanted and needed in my life.

Sorry, I'm not explaining it well, but I suppose a comparison would be to a fatigue management service. You have fatigue: here are ways of coping in your personal circumstances, report back on how it goes.

in reply to Lupiknits

Thanks. I will mention it

rlupus profile image
rlupus

Yes I defiantly get worst this time round I have had a heavy col since August and cannot shift it , Its turning to flu my GP unfortunately has not been able to give me my flu jab yet because of how ill I am .

in reply to rlupus

I know. It takes forever to get rid of simple little colds. Good luck and thanks for the response.

Cann profile image
Cann

Yes, it certainly affects me including my gut. I have difficulty finding what I can eat because I need warm food and it means cooking more as well as trying to cope with everything else - aching joints, sensitive teeth, tiredness, etc.

I like to get out as I am affected by the heating indoors, too, and the lights being electro-sensitive - I've just managed to get a shield put on the LED street light that shines in my bedroom window on my face all night. At least it stops the glare of the bulb right in my face, but darkness would be more advantageous for good sleep and LEDs are not good for the eyes and cells of the body, apparently.

The pollution especially of traffic seems worse with the colder weather.

Good food, keep moving and exercise, ample rest and all that was intended by nature seems to be the best way for me.

I refused the flu jab because I read it is only effective in 2% of the population and vaccinations can also cause an abnormal immune reaction which knowing my body would happen to me!

in reply to Cann

I love that people call it the “flu jab” in the UK. Thanks for replying.

Yes!!! Especially from a drop in hot weather to rain. My body reacts so quickly. I can also tell when it will rain even though a bright sunny day as my joint will ache

Cann profile image
Cann in reply to

Me, too, with the joint ache and storms. My mother said I am just like my grandmother - she could always tell when it was going to thunder by my grandmother's symptoms of feeling nauseous, etc. I am the same.

in reply to Cann

Lets call it a superpower.

Cann profile image
Cann in reply to

I think it is more like an old soul - many times on this earth!

Hit's like a bus!! Breathing hurts chest fingers numb toes numb...man had to get woolies out ASAP everyone else is like it's not that cold!!! going to invest in small heater to take to work. Why is it that we suffer in the sun and cold why isn't there a happy medium 😥...anyone???

in reply to

I bring a heater too!

Cann profile image
Cann in reply to

2 pairs of socks inside my slipper socks indoors and leg warmers inside my trousers!

Coffeetime profile image
Coffeetime

MisterE, you have a great outlook on life.

in reply to Coffeetime

I don’t think I am as sick as some of these people. Thank you!

Cann profile image
Cann in reply to

It is managing it and keeping positive or even seeing the funny side of it all - oh, this crazy life!

in reply to Cann

And don’t dwell on it! I have it a lot better than some of the other people online.

Cann profile image
Cann in reply to

Yes, certainly don't dwell on it - what we think matters and thoughts materialise good or bad. I do my best to keep busy, but eating the right energy foods for me are so important.

Life is what it is. The more we can make joys out of simple things is all I think is important. Sure I can't run a marathon now but very unlikely I ever would. I do miss being able to stay awake during work hours or socialising more often but Ive turned my chemists trips into outings and Doctor appointments like Im seeing long lost friends. Ok I may be bonkers too. Everyday we wake is a good day xx

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